like a mighty rushing wind….

March 11, 2010

Sorry for the lack of updates for the past couple of days… They were really really busy for Miss Em.

By Sunday she was so very much done with CRRT dialysis that she twisted her entire body like a twizzler and clotted the machine.  She was at the maximum amount of all of her sedation yet literally sat up in bed.  They had to make a decision on whether or not she was ready to come off of CRRT and go to Hemo-dialysis.  She made the decision for them when she wouldn’t be still! They stopped the CRRT and started Hemo-dialysis Monday Morning.

Mondays dialysis went better than expected, but Monday night she decided that she was done with her Central Venous Femoral Line and pulled it out.  For those of you who are not aware of where they put that, it is in the main artery in her leg, so pulling it out without notice is not a good thing!  They had to apply hard pressure for over three and half hours before it would stop shooting blood.  I honestly can say that I never want to see that again, her bed linens were soaked with blood.   I swear that every Monday something drastic happens with her!

Tuesday she decided to pee 1200 cc’s!  That is what we were looking for!  Her kidney function looked great so she does not need to do dialysis again (unless something drastically changes).  She has gone down from 15 drips (iv medication) to  4!

She is back to her adorable self and is longing for Taco Bell Sweet Tea (although I don’t think that is on her renal diet!)

Emmaicu

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{ 26 comments }

saturday morning update

March 6, 2010

miracle

Remember how I have always said “do not miss the small miracles while waiting for the big one”. Yesterday Emma’s left lung collapsed from the air pocket that surrounded it. They sent her to Interventional Radialogy to put another chest tube in. When the radiologist looked at the CT scan, her lung had re-inflated and the air pocket was decreased significantly! That is one less tube in her little already tube filled body and one giant blessing for mom and dad!

Plans for the day:

  • Removing the breathing tube.
  • Dialysis is remaining the same as it has been the last 2 days.
  • Minimizing her sedation to help her breath off the vent.

Her echocardiogram looked wonderful today.  Much better compared to the last few.

So all in all, we are on an upward swing.  She still has a long long way to go but getting that tube out is one less thing we have to deal with!

Thanks again for all of your prayers, we are seeing the evidence of every single one daily :)

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Friday Update-3/5/10

March 5, 2010

There wasn’t much to update on yesterday, but today holds a totally different scenario. Her x-ray yesterday looked great, other than a small pocket of air below her left lung. Today it fills her left cavity. They are going to put another chest tube in (she still has the original one on [...]

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dont stop now --->

Wed. Afternoon Update-3/3/10

March 3, 2010

Sorry about the lateness of this update, we were waiting on Transplant to round and they just left. Nothing much has changed today with Emma. The Neurologist came in yesterday because of her issues in the OR and Emma responded appropriately to stimuli so she feels that there is no worries neurologically. [...]

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dont stop now --->