Soak It In Saturday…
If you enjoyed this post, make sure you subscribe to my RSS feed!
Dr. Foo Coo
Emma has this thing with calling her doctors “oo” plus the first letter of their last name. So Dr.F has always been Dr. Foo, and Dr.P has always been Dr. Poo. Today we introduced a new doctor, Dr. Coo. Dr. Coo is her neurologist, whom she has seen many times, but never really paid attention to, until today. Today he was all she could talk about. We were seen by both Cardiology and Neurology in the same room (change for Miss Emma is tough, so they accomodate her as much as possible) so both doctors were and out of the room simultaneously. By the end of the visits, Dr Foo and Dr Coo became Dr. Foo Coo- which of course was the most hillarious thing added with the expression on her face while trying to figure out who was who, and add to that her running up and down the halls cupping her mouth shouting “Foo Coooooo - Fooo Cooooo”…. It was a trip!
Both doctors were very impressed with our little super star, and of course she was “on” the entire time we were there. The last time neurology saw her, she was in ICU last January and not doing very well. He was very happy with her over all progress and was super thrilled that she was thriving in school. He did say that because of her age and her struggles due to her disabilities, he wanted us to visit with a behaviorist, which we are very open too. We talked about her sleep issues, but decided against medication because of her muscle disease- whenever a doctor says ” I could prescribe something to help her sleep through the night, but there is a possibility due to her mitochondrial issues that she wont wake up”…you dont have to ask me twice what I want to do. We are going to continue the hefty dose of benedryl before bed, with the approval of both cardiology and neurology and try to deal with the moments when sleep escapes her.
Cardiology was equally impressed with her, although her heart function hasn’t improved any- it hasnt decreased either. Dr. Foo has a way of making her smile like no other doctor has before. As soon as he walks in the room, the first thing he does is go straight to her and ignores us- which is great and soo different than most doctors that see her. They have this bond that is so amazing, and he is a christian which adds to our security in his advice. He truly loves these kids like they are his own, and goes above and beyond with Emma. We couldnt have asked for a better Transplant Doctor, he truly is the best.
We dont have to go back to Transplant clinic for 2 months!! TWO MONTHS!! And neurology said they wanted to see her back in 4 months, which is also wonderful! It will be weird not going every two weeks, but at the same time so very wonderful to not have to make that trip every other week.
One of the highlights for me was lunch with my dad. I couldnt imagine my life without him in it- I am 29+ years old and still such a daddy’s girl! We talked about nothing and everything- but more than anything, we just enjoyed the time we spent together. Ill miss the talks we have on the way up and back every two weeks. They were very special to me.
So all in all, it was a wonderful day. My daughter is thriving and life is settling back down again. Life is good.
(Did I mention my husband is taking me out tomorrow night? Oh yes he is… )
If you enjoyed this post, make sure you subscribe to my RSS feed!
