Comments on: I have something to say…. http://especiallyheather.com/2007/01/30/i-have-something-to-say/ Its not about the hair... Wed, 16 May 2012 19:46:14 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: Anonymous http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-2/#comment-11686 Anonymous Thu, 07 Jun 2007 23:11:46 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-11686 I had a wonderful worship experience listening to and watching the 1st video. It was peaceful music to my soul. I loved hearing Emma Grace and I heard her loud and clear. She is expressing herself and I KNOW she has something to say. Her words are music to the ears. :-) I had a wonderful worship experience listening to and watching the 1st video. It was peaceful music to my soul.

I loved hearing Emma Grace and I heard her loud and clear. She is expressing herself and I KNOW she has something to say.

Her words are music to the ears. :-)

]]> By: JenMom@lotsofscotts http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-2/#comment-11471 JenMom@lotsofscotts Tue, 05 Jun 2007 01:43:11 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-11471 Beautiful! Beautiful!

]]> By: Valerie http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-11392 Valerie Sat, 02 Jun 2007 10:40:59 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-11392 Heather, I want to thank you for sharing your family's MIRACLE! It touched me to read your commitment. I have been blessed to have 3 heathly children, but I bet I am not half as strong as you have become. If Emma's way of communicating offends anyone they need to take a monment and try to put themselves or their child in her shoes and I promise you they would be grateful to have her as you all are. That just shows you that people take alot for granted this day in time. Yes, she is has the right like everyone else to communicate as loud as she wants to. Yes she is different (but precious) and life would be very dull if we were all alike. My thoughts and prayers will be with you and your family for always! When times get hard, just remember God has a reason for everything that happens, even though its hard to understand at times. Emma sing as LOUD as you baby girl.... Heather, I want to thank you for sharing your family’s MIRACLE! It touched me to read your commitment. I have been blessed to have 3 heathly children, but I bet I am not half as strong as you have become. If Emma’s way of communicating offends anyone they need to take a monment and try to put themselves or their child in her shoes and I promise you they would be grateful to have her as you all are. That just shows you that people take alot for granted this day in time. Yes, she is has the right like everyone else to communicate as loud as she wants to. Yes she is different (but precious) and life would be very dull if we were all alike. My thoughts and prayers will be with you and your family for always!

When times get hard, just remember God has a reason for everything that happens, even though its hard to understand at times.

Emma sing as LOUD as you baby girl….

]]> By: Jen http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-11146 Jen Tue, 29 May 2007 19:40:36 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-11146 My 5 year old daughter watched this with me, and she too wanted to know about the song."What song is that?" I told her i thought she was making up her own song...."no, I have heard that song before". Children really do get it...no wonder we are told to be as little children...so pure in thought and expression....even when the expression does not meet our expectations or standards. My 5 year old daughter watched this with me, and she too wanted to know about the song.”What song is that?”
I told her i thought she was making up her own song….”no, I have heard that song before”.

Children really do get it…no wonder we are told to be as little children…so pure in thought and expression….even when the expression does not meet our expectations or standards.

]]> By: Lou Arnold http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-11073 Lou Arnold Mon, 28 May 2007 00:41:00 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-11073 I undersand everything you are saying. My sister is 29 years old and autistic. I know the looks and the whispering. It is ashame that people view these people as nonhuman. It is very upseting to me. I am a special education teacher and try my best to get people to understand that these children are children just like the rest. I undersand everything you are saying. My sister is 29 years old and autistic. I know the looks and the whispering. It is ashame that people view these people as nonhuman. It is very upseting to me.

I am a special education teacher and try my best to get people to understand that these children are children just like the rest.

]]> By: michelle http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-10147 michelle Mon, 14 May 2007 14:24:18 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-10147 i just stumbled onto your blog... and this post especially caught my eye. and reminded me of Proverbs 23:11-12 "...for their defender is strong, HE will take up their case..., (YOU) apply your heart to instruction and your ears to words of knowledge." God alone is our best defender. We do not need to defend ourselves or our loved ones, we need only to listen to His words of eternal, knowledge. i just stumbled onto your blog… and this post especially caught my eye. and reminded me of Proverbs 23:11-12 “…for their defender is strong, HE will take up their case…, (YOU) apply your heart to instruction and your ears to words of knowledge.” God alone is our best defender. We do not need to defend ourselves or our loved ones, we need only to listen to His words of eternal, knowledge.

]]> By: Heather Lee http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-9250 Heather Lee Mon, 07 May 2007 14:07:38 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-9250 I am amazed at your strength....thank you for allowing me the pleasure of knowing more about your daughter. I am currently obtaining a degree in Special Education, and just seeing that there are parents in this world who believe in their children no matter what labels the world may attatch to them, well it reminds me of why I want to teach in the first place, because these children want to learn, and deserve the very happiness that we all do. the love you have for her, its so beautiful only God could really be able to define it...thank u for letting us see it ! God bless you and your daughter and may your page continue to touch peoples minds and hearts....~heather lee I am amazed at your strength….thank you for allowing me the pleasure of knowing more about your daughter. I am currently obtaining a degree in Special Education, and just seeing that there are parents in this world who believe in their children no matter what labels the world may attatch to them, well it reminds me of why I want to teach in the first place, because these children want to learn, and deserve the very happiness that we all do. the love you have for her, its so beautiful only God could really be able to define it…thank u for letting us see it !
God bless you and your daughter and may your page continue to touch peoples minds and hearts….~heather lee

]]> By: Jenn M. http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-8141 Jenn M. Thu, 03 May 2007 13:07:57 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-8141 You are a beautiful mother. You are a beautiful mother.

]]> By: mcewen http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-7916 mcewen Wed, 02 May 2007 02:22:21 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-7916 Newbie - found your blog via a link from 'life with Autism' who linked your posting. Not sure why I've not come across you before, but I was posting on this issue [my autistic boys and their language] today [blog against Disablism Day] I had that same video on my sight - it is such an eye opener that I wish more people could watch it. Best wishes to you and yours Newbie – found your blog via a link from ‘life with Autism’ who linked your posting.
Not sure why I’ve not come across you before, but I was posting on this issue [my autistic boys and their language] today [blog against Disablism Day]
I had that same video on my sight – it is such an eye opener that I wish more people could watch it.
Best wishes to you and yours

]]> By: Holly Smith http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-7461 Holly Smith Thu, 26 Apr 2007 20:08:35 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-7461 Hi Heather, I wanted to tell you that I had the privilige for two years to work with a young autistic boy in Preschool choir at church. We'd sit and sing and do rhythm and sometimes just smile. He was the youngest in his family. Sometimes there were people (who truly thought too highly of themselves) who would be unkind and act like Brent's voice was too loud, but I tell you what...each one of us in that classroom were more blessed by Brent than anything else about the class. If he was out sick, everyone missed him. Everyone learned something very precious from Brent...he caused us to love more deeply I think. They moved away to Ft. Worth and enrolled Brent in one of the horse therapy schools. Brent really bloomed there. At the same time in Texas, there was a friend of Chris' sister, whose son was autistic. She had written a book about it. In the book she wrote that she took her son out early in the morning to show him what "quiet" was like, but he heard the birds and distant cars still. Her research led her to believe that very good hearing and over-stimulation due to all the sounds caused difficulty. She said that is why when her son was in class, he'd tap a pencil. He'd listen to the teacher, but the tapping helped him to focus on what she said. I'm praying for you today...still praying for God to remove the tumor...asking Him to bless you with a miracle! Much love and prayers, Holly PS You have a treasure in Emma Grace...what a great name for her, too! Hi Heather,

I wanted to tell you that I had the privilige for two years to work with a young autistic boy in Preschool choir at church. We’d sit and sing and do rhythm and sometimes just smile. He was the youngest in his family. Sometimes there were people (who truly thought too highly of themselves) who would be unkind and act like Brent’s voice was too loud, but I tell you what…each one of us in that classroom were more blessed by Brent than anything else about the class. If he was out sick, everyone missed him. Everyone learned something very precious from Brent…he caused us to love more deeply I think.

They moved away to Ft. Worth and enrolled Brent in one of the horse therapy schools. Brent really bloomed there.

At the same time in Texas, there was a friend of Chris’ sister, whose son was autistic. She had written a book about it. In the book she wrote that she took her son out early in the morning to show him what “quiet” was like, but he heard the birds and distant cars still. Her research led her to believe that very good hearing and over-stimulation due to all the sounds caused difficulty. She said that is why when her son was in class, he’d tap a pencil. He’d listen to the teacher, but the tapping helped him to focus on what she said.

I’m praying for you today…still praying for God to remove the tumor…asking Him to bless you with a miracle!

Much love and prayers,
Holly

PS You have a treasure in Emma Grace…what a great name for her, too!

]]> By: momto3cubs http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-6924 momto3cubs Sat, 21 Apr 2007 15:58:43 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-6924 I just spent time "getting to know" you and your family. You are amazing and I've enjoyed and learned much from your site. Thank you. I'll come back to check on you all again. I just spent time “getting to know” you and your family. You are amazing and I’ve enjoyed and learned much from your site. Thank you. I’ll come back to check on you all again.

]]> By: Jenn in Holland http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-6408 Jenn in Holland Tue, 17 Apr 2007 08:38:50 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-6408 Heather- I have been reading the multiple layers of your story for the past hour or so. I had fully other intentions for my day, but actually believe I was led to find this site and be able to read your life today. To say that I am moved is a grand understatement. I am so touched by your honesty and by your faith. Reading here this morning has affected me deeply and I really appreciate the chance I had to spend with you. I will of course be adding my prayers to others for your success as you meet with the experts at the MAYO next week. I, like you, have no idea what may come of it, but I do believe strongly in the power of literal and constant miracles in life. I also believe that you are one of the amazing, incredible human beings who can handle ANYTHING. There is support and love behind you, to buoy you up and protect you in peace, comfort and grace. I want to say thanks especially for this particular post about Emma Grace. I can't exactly sum up what viewing it has offered me, but in looking deeper into my youngest son's delays and disablilities I am grateful to know others who are living life with someone very special and teaching me that that alone is a precious blessing. Blessings on wing to you and yours. Heather-
I have been reading the multiple layers of your story for the past hour or so. I had fully other intentions for my day, but actually believe I was led to find this site and be able to read your life today. To say that I am moved is a grand understatement. I am so touched by your honesty and by your faith. Reading here this morning has affected me deeply and I really appreciate the chance I had to spend with you. I will of course be adding my prayers to others for your success as you meet with the experts at the MAYO next week. I, like you, have no idea what may come of it, but I do believe strongly in the power of literal and constant miracles in life. I also believe that you are one of the amazing, incredible human beings who can handle ANYTHING. There is support and love behind you, to buoy you up and protect you in peace, comfort and grace.
I want to say thanks especially for this particular post about Emma Grace. I can’t exactly sum up what viewing it has offered me, but in looking deeper into my youngest son’s delays and disablilities I am grateful to know others who are living life with someone very special and teaching me that that alone is a precious blessing.
Blessings on wing to you and yours.

]]> By: Wendy http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-6229 Wendy Sun, 15 Apr 2007 19:08:23 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-6229 Heather - thank you for sharing this. I am a physical therapist and I work with both adults and children with developmental disability (including autism). You have said what I always have believed...just because we can't always understand someone's language, doesn't mean they don't have something meaningful to say and add to the world. Your thoughts and the videos give great insight into the sometimes confusing world of autism. Bless you. Heather – thank you for sharing this. I am a physical therapist and I work with both adults and children with developmental disability (including autism). You have said what I always have believed…just because we can’t always understand someone’s language, doesn’t mean they don’t have something meaningful to say and add to the world. Your thoughts and the videos give great insight into the sometimes confusing world of autism. Bless you.

]]> By: Jacqui http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-6185 Jacqui Sun, 15 Apr 2007 12:34:41 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-6185 Heather, never apologize for Emma. God made her, and He doesn't make mistakes! My friend Kristina has a unique perspective on her 4 year old autistic son. She feels he is a truly spiritual being, in harmony with God, and enjoying His creation in a way we "normal" people cannot. Heather, never apologize for Emma. God made her, and He doesn’t make mistakes!

My friend Kristina has a unique perspective on her 4 year old autistic son. She feels he is a truly spiritual being, in harmony with God, and enjoying His creation in a way we “normal” people cannot.

]]> By: Amy http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-6084 Amy Sat, 14 Apr 2007 03:44:41 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-6084 Heather, what a beautiful tribute to your daughter. Her story, and yours have brought me to tears this day. Know that someone in Indiana is praying for your family tonight. Heather, what a beautiful tribute to your daughter. Her story, and yours have brought me to tears this day. Know that someone in Indiana is praying for your family tonight.

]]> By: Colleen http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-4913 Colleen Thu, 01 Mar 2007 22:42:48 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-4913 Wow! What a truly amazing way to see things. I can see and read that you are blessed and little Emma as well. You are an amazing mom and I for one, thank you for sharing this. I have never even thought of autism in correlation with a language but I have always believed that if we opened our hearts and minds, that we could come to understand persons with this condition. Thank you for showing me there is more! Wow! What a truly amazing way to see things. I can see and read that you are blessed and little Emma as well. You are an amazing mom and I for one, thank you for sharing this. I have never even thought of autism in correlation with a language but I have always believed that if we opened our hearts and minds, that we could come to understand persons with this condition. Thank you for showing me there is more!

]]> By: Dad http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-4862 Dad Mon, 26 Feb 2007 02:30:42 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-4862 I know that I come from a position of bias being blessed to be Heathers Dad, and The Papaw of Emma Grace. I have believed for some time now that Emma was given to Mark and Heather for "His Glory"(God's). He knew He could trust them with one who was so defenseless, vulnerable,and Very Precious to Him. I also believe that God desires to, and has touched others through the weakness and frailty of Emma's life; to challenge those who think they have it all figured out and all under control. I love my daughter, she takes my breath away. I love my precious granddaughter Emma, she is amazing, and helps me to understand how weak I really am. I love My Lord, His gifts and love are perfect. Psalm 139:14 I will give thanks to Thee, for I am fearfully and wonderfully made; Wonderful are Thy works,And my soul knows it very well. Psalm 41:1 How blessed is he who considers the helpless; The Lord will deliver him in a day of trouble. 1 Cor. 1:27 “but God has chosen the foolish things of the world to shame the wise, and God has chosen the weak things of the world to shame the things which are strong, Job 5:16 "So the helpless has hope, And unrighteousness must shut its mouth. YEAH GOD!!!! Dad I know that I come from a position of bias being blessed to be Heathers Dad, and The Papaw of Emma Grace. I have believed for some time now that Emma was given to Mark and Heather for “His Glory”(God’s). He knew He could trust them with one who was so defenseless, vulnerable,and Very Precious to Him. I also believe that God desires to, and has touched others through the weakness and frailty of Emma’s life; to challenge those who think they have it all figured out and all under control. I love my daughter, she takes my breath away. I love my precious granddaughter Emma, she is amazing, and helps me to understand how weak I really am. I love My Lord, His gifts and love are perfect.

Psalm 139:14
I will give thanks to Thee, for I am fearfully and wonderfully made; Wonderful are Thy works,And my soul knows it very well.

Psalm 41:1
How blessed is he who considers the helpless; The Lord will deliver him in a day of trouble.

1 Cor. 1:27
“but God has chosen the foolish things of the world to shame the wise, and God has chosen the weak things of the world to shame the things which are strong,

Job 5:16
“So the helpless has hope, And unrighteousness must shut its mouth.

YEAH GOD!!!!

Dad

]]> By: Karen http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-4836 Karen Thu, 22 Feb 2007 04:50:54 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-4836 This brings back memories of when I was a child-- I was hard of hearing and I couldn't monitor the loudness of my voice and was sometimes repriminded to lower my voice. As a result, I learned to speak so softly that as an adult, people started asking me to speak up... Karen This brings back memories of when I was a child– I was hard of hearing and I couldn’t monitor the loudness of my voice and was sometimes repriminded to lower my voice. As a result, I learned to speak so softly that as an adult, people started asking me to speak up…

Karen

]]> By: Kari http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-4691 Kari Thu, 08 Feb 2007 15:04:43 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-4691 Amen, sister! Never apologize for the beautiful and unique way the Father God has knit together your sweet Emma! Man does not understand the ways or thoughts of God. He has designed Emma with a purpose...I can see what a joy and blessing she is to your family! Keep rejoicing in the precious gift she is!! Amen, sister! Never apologize for the beautiful and unique way the Father God has knit together your sweet Emma! Man does not understand the ways or thoughts of God. He has designed Emma with a purpose…I can see what a joy and blessing she is to your family! Keep rejoicing in the precious gift she is!!

]]> By: Rachel http://especiallyheather.com/2007/01/30/i-have-something-to-say/comment-page-1/#comment-4680 Rachel Thu, 08 Feb 2007 04:06:59 +0000 http://www.especiallyheather.com/2007/01/30/i-have-something-to-say/#comment-4680 Heather, as a mom of an autisic daughter, I too know what it means to feel awkward. My husband and I have heard it all. We are lucky and unlucky that our daughter is extrememly high functioning making her awkward behaviors even more noticable. I don't aplogize for her behvior but we have certainly avoided certain places due to this. God blesses us all in different ways, and aren't we lucky to be able to see beauty in something so many find tragic. Heather, as a mom of an autisic daughter, I too know what it means to feel awkward. My husband and I have heard it all. We are lucky and unlucky that our daughter is extrememly high functioning making her awkward behaviors even more noticable. I don’t aplogize for her behvior but we have certainly avoided certain places due to this.

God blesses us all in different ways, and aren’t we lucky to be able to see beauty in something so many find tragic.

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