I wish that I could tell you that I walked away from that appointment with more answers- but in all honesty I have more questions. It would be easier for me to list what he said, instead of “blogging” it.
1. The tumor has been there for a long time.
2. My EEG is not back yet, and possibly wont be back before my trip to MN
3. He did everything he could to tell me it was “malignant” without using that word.
4. He stated that people with this tumor do not live more than 25-30 years (from when? He skipped that question)
5. He strongly encouraged us against surgery – he said it would only “buy me” maybe 6 months more than with surgery
6. That would make me around my parents age…. I’m not okay with that.
7. He said that surgery could render me weakened on the right side – It could cause speech/memory/cause paralysis
8. He said “20 years is a long time”….. I say its not long enough….
I also have an appointment with MD Anderson in Orlando on Friday at 4pm, I want to have 3 opinions to review before we make any major decisions. The only way I can explain how this doctors appointment felt is to compare it to how I felt when we found out about Emma Grace in utero. The first doctor we saw told me to go home and wait for her to die… to live life as normally as I could until then.
I’m not okay with that.
So, we move forward and we keep searching. And above all we continue to pray- because our family has already seen God’s hand move mightily once, we know He is in ultimate control.
Remember to keep Kelli in your prayers as she travels for her doctors appointment today… she has become so near and dear to my heart.
Psalm 27 The LORD is my light and my salvation;
whom shall I fear?
The LORD is the stronghold of my life;
of whom shall I be afraid?When evildoers assail me
to devour my flesh–
my adversaries and foes–
they shall stumble and fall.Though an army encamp against me,
my heart shall not fear;
though war rise up against me,
yet I will be confident.One thing I asked of the LORD,
that will I seek after:
to live in the house of the LORD
all the days of my life,
to behold the beauty of the LORD,
and to inquire in his temple.For he will hide me in his shelter
in the day of trouble;
he will conceal me under the cover of his
tent;
he will set me high on a rock.Now my head is lifted up
above my enemies all around me,
and I will offer in his tent
sacrifices with shouts of joy;
I will sing and make melody to the LORD.Hear, O LORD, when I cry aloud,
be gracious to me and answer me!
“Come,” my heart says, “seek his face!”
Your face, LORD, do I seek.
Do not hide your face from me.Do not turn your servant away in anger,
you who have been my help.
Do not cast me off, do not forsake me,
O God of my salvation!
If my father and mother forsake me,
the LORD will take me up.Teach me your way, O LORD,
and lead me on a level path
because of my enemies.
Do not give me up to the will of my
adversaries,
for false witnesses have risen against me,
and they are breathing out violence.I believe that I shall see the goodness of
the LORD
in the land of the living.
Wait for the LORD;
be strong, and let your heart take courage;
wait for the LORD!
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Hold on to HOPE, Heather dear, for that is what will see you through. Prayers continue for you from Iowa.
Well….Okay then!
We’ll just invite this Doctor (and any other nay-sayers) to the official YAY! GOD! reunion that I am volunteering to plan. What a celebration we will all have when God demonstrates His power by healing you…completely…by giving you a supernatural miracle that even a number one medical facility can’t explain.
We’ll find a mid-country location (or Florida works too!)…..I’ve asked Gibee to be on the Heather’s Miracle Reunion Committee….and she has agreed. Diane J. will be in charge of the menu planning…as she always has the best Sunday Dinner posts! So the plans are being prepared, Heather…they’re saved on my PC in a file entitled: Heather’s Miracle!
Can you visualize all of the happy-dancing there will be?
I can!
So we continue to be honored to storm the gates of heaven on your behalf; we will reverberate cyberspace tomorrow while clicking on to BooMama’s fund raiser; and with great joy, will anticipate the day that God will heal you completely, giving witness to your inspiring faith and His great love and promise!
You! Are! Loved! Heather!
Diane
Heather,
I am here in Orlando. Is there anything I can do in real life for you Friday afternoon or evening? I am praying!
Justed wanted to tell you again that you are in my prayers. Not that what I think matters, but if were in your shoes, I would follow the same course of action that you are.
Good luck at M.D. Anderson- I hear that they do amazing things.
Sorry about the typos- I have a kiddo on my lap.
I have been meaning to ask, did I miss it or have you figured out whats wrong, and why your so dizzy? I know you mentioned that they did not think it was due to the tumor, but did they figure it out, or at least give you something to try to help you with it? I cant imagine dealing with all this with the whole world spinning!
Love & hugs from our family to yours…xoxoxox Tamara & Crew
Well girl wave as you head to Orlando, you will be passing me. I am praying for you!!!
Continuing to pray, Heather. . .
Heather,
We live in the Twin Cities – near the airport. If there is anything we can do while you are here, please don’t hesitate to ask. We will be praying for your family.
Jen
Heather – I was just reading this post again and praising God for all that we will see through your life. Especially Heather right?
All the fighting and all the lessons you learned through Precious Emma Grace have equipped you head of time in how to fight in this medical community.
Your Easton is on my mind and she is going to be on my girls prayer list. They are 10 & 11 and are holding her before God as she walks through this.
Again tonight – please know he sees each tear – He loves you all… praying for a night of rest.
I’m so sorry this appointment didn’t go as well as everyone was hoping. Third time’s a charm, right?
God bless you tonight, Heather, and know that I’m praying.
Heather, I truly believe all of us who are gathered for these blog awards were meant to come together to pray for you. Know that you will not be forgotten by our family in daily prayer.
still praying…
Hi you!
Just got home but I’m gonna wait to tomorrow to call you, k!
Sweet dreams -
You’re such a strong, amazing young woman. Instead of crumbling as so many would in light of this situation, you have risen to the occasion and are seeking knowledge about what is happening with you. Knowledge is power…just as faith is power.
Doctors are wonderful…but they are only human and humans make errors.
My nephew was in a car accident in 2000. He was in a coma for 4 and a half months with a severe brain injury. Two days after the accident my sister asked one of his doctors for his prognosis. The doctor looked at her in disbelief. “Prognosis??” he said. He kicked a chair that was sitting against the wall and said that Allen would be no different than that chair. He said there was NO prognosis. Only acceptance of that fact. He then said “that is if he lives.” I remember the hush that fell over all of us and our mouths dropped open for about 5 seconds and then my sister said “I don’t think so” and she turned and walked away from that doctor. She went straight to the head of the hospitals neurosurgery floor and told him that that particular doctor was to never, ever go anywhere near my nephew again, she didn’t want anyone with any negativity near him.
It was a long road but my nephew did come out of his coma. His mind is perfectly fine.Long term memory, short term memory AOK. His body has issues. He remains in a wheelchair as his left side is weakened and he can no longer make his left leg and arm function properly. But he is nowhere near being an inanimate object like a chair.
So doctors don’t know everything. But I’m sure you already know that. I don’t sense one tiny bit of give up in you. No doubt in my mind that you’re going to whip this.
Hugs~
Still praying.
Heather, I have been reading your story for about a week now. It is very touching to me, because I lost my mom last year to a brain tumor. I’m not going to tell you any stories, cause that’s not what you need right now. But I do want to say that your positive spirit is very encouraging to me. Go get your third opinion. I’m praying for you.
Hugs,
Melinda
In a perverse sort of way, it’s almost a blessing you know your way around the medical world well enough to get several opinions. How frustrating to walk away with more questions than you walked in with. Still praying.
Praying for you.
while reading this today a song from church came to mind.
words are:
Whose report will you believe?
We shall beleive the report of the Lord
Whose report will you believe?
We shall believe the report of the Lord
His report says I am healed
His report says I am filled
His report says I am free
His report says Victory!
We do not believe the Doctors reports in our spirit, we only have to listen. We believe in our spirits that you are healed. Speak to that Cancer! It is gone in the name of Jesus.
Still praying here in England. I have told so many people about you, it feels as though you are part of our lives. 20 years is a very long time for the development of science and cures to be found. Never take your eyes off Jesus and those mountains will dissolve. My whole family sends their love and prayers.
Supporting you in prayer, Heather. {{HUGS}}
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