One down, one to go..

I was mistaken yesterday when I told you that I would be having a radiation/chemotherapy consult today. Today we met with and oncologist who will be handling my chemotherapy, and he referred me to a local radiation clinic here in Sarasota. I will have my radiation consult tomorrow at 4pm. We came home this afternoon with a pile of prescriptions, one of which was Temador. I will be on this medication for a year (not what I had hoped for, time wise, but it is standard protocol for cancer patients). I will share with you what I am on (in medical terms) tomorrow, we just dropped the script’s off at Walgreen’s. He put me on a nausea medication with a back up of Zolfran (or however you spell it) if I need it, an antibiotic (precaution for pneumonia while I am going thru chemo) and some more that I cant remember right now. (I am having trouble with my short term memory, so please pray for that) I will also be getting labs once a week on Fridays to make sure my white cell count doesn’t drop, if it does then I will have to stop chemo. His nurse was very nice, and gave me a hug when I left. I did have moment in the cafeteria where I cried. Reality hit me pretty hard when we walked in the door, seeing all these people with no hair made me really sad- I made it all the way to the cafeteria and broke down. But after that I was okay.

Here are my post op MRI’s. The second picture was with contrast, so that is why the spot is white.

postopmri1.png postopmri21.png

I am amazed at the first image. My incision on the top of my head is so very visible there. And the second image, I am amazed that the tumor was that big… and I never knew that it was there. That is just unbelievable to me. The nurse asked me if i was on any seizure or edema medications, to which I replied “no”. She said that I was really lucky. I just nodded and said “I am blessed”.

And I am…

So there you have it. I will update tomorrow regarding my radiation consultation. Pray for continued strength for me…that I will go in there and I will beat this… and that I will not break down like I did today. My heart breaks for all those who are going thru this…but one thing I noticed today is that there is a fight in their eyes..

Just like mine.

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  1. “I can do all things through Christ who strengthens me.”

    When I was in the beginning stage of treatment for my auto-immune disorder at the Texas Cancer Center, I was incredibly overwhelmed!

    There were days back in the Infusion Room surrounded by chemo patients where I pretended to sleep. I didn’t want anyone to talk to me and if I had to listen to one more side effect and what it was doing to their bowel habits, I would pull my own IV out and run out the door!

    Other days, the Lord opened the door for some lovely conversations. My heart was open to others and there was genuine ministry to one another going on.

    I encountered many different people there. Older people, the young woman with 2 very small boys, the teenage girl translating from English to Spanish for her mother and so on. Suffering knows no boundaries or class distinctions. It’s an equal opportunity offender!

    However, the grace of Christ Jesus makes all things bearable. Sometimes, it’s the answer to a prayer for just 5 more minutes of encouragement and endurance. Other times it’s an opportunity to bless someone else, taking our thoughts off of our own situation.

    No matter what, God rules and reigns, even when it doesn’t make sense.

    Our God rules and reigns, ESPECIALLY when it doesn’t make sense!

  2. I have no doubt that you will go into that place and be a light to others there. You (Christ in you) will affect so many people while you are there! Not everyone fighting cancer knows the Lord. You will impact the staff, other patients, family waiting for those patients… You and your family will be a light to everyone there. Because the Lord will shine through you.

    And hey, ANYONE would need a chart to remember all those meds!

  3. Zofran…good stuff! Mel had it for her pregnancy first trimester. ‘spensive, but good.

    Anyway, I’m praying for you and crying with you. Love and hugs from MN.

  4. I am still praying for you! Those pictures are amazing! It is hard to believe!

  5. I have never met you, but I have developed a deep, sisterly love for you. I guess that’s the great thing about the family of Christ, huh? We don’t need to meet in person to know the family bond. You are in our prayers.

  6. Keep fighting, Heather. You are so very strong. Know that my prayers for you continue – I am praying for a complete healing for you. I hope you have a good weekend. :)

  7. Hi Heather

    I will continue to pray fo you and your family!
    WIth the strenght of Jesus you will get though this…and the little things matter.
    God Bless

  8. You are such a fighter. With God, you will get through this! Continuing prayers for you and your family.

    God Bless~

  9. Heather, I gain strength in my own fight by coming here daily. The nurse in me makes me write this note, though. When you posted the photos of your films, you posted a great deal of personal info. We all know your full name, your date of birth, your medical record number, and the name of your doc. In these times with identity theft being so common, I fear that your personal data is there for all to see and perhaps, be tempted. Could you go back to that image and block out that part?
    I find strength in your faith and courage. My faith has felt wobbly sometimes, lately. Your blog has helped more than you can know. Thank you!

  10. Heather,
    you are an inspiration to all of us. I am asking God to help you see every person in the radiation waiting room or chemo infusion room through His eyes. Yes, there are days when people with cancer feel hopeless. But you have that fire in your eyes. You have the amazing light of Jesus in your life. Undoubtedly, people will ask you, ” What is it tht is different about you and the way you approach your treatment? ” Jesus is still holding you. Praying that your sweet babies feel the arms of Jesus all around them today. Thank you for being willing to share this experience with us. Praying for you.

  11. Hey girly,, I have some good things about having no hair… you can take 5 minuet showers,, you don’t have to spend so much time on blow drying and hot curling,, you can wear solored shirts with out your hair falling down in the shirt,,,, You dont’ have to worry abotu what hair color you have,, OR IF YOU HAVE GREY HAIR,,, riding on the freeway with the windows wide open is a blast, your hair is not in yoru eyes,,,you can wear those really cute scrves we see them rich people wearing,,,,OH girl I coudl go on,, The Lord is by your side and ready to wipe your tears,, cry allows Him to wash away the fear.

    KEEP Keeping on…. your right where God wants you to be..

  12. Wow, I have goosebumps from looking at those images. Isn’t it amazing what medical science can do these days? Absolutely astounding.

    You are always in my thoughts and prayers.

  13. You are blessed. And you will fight and WIN.

    And the pictures are just awesome. Especially comparing it to the first one you showed us.

    Praise the Lord. I’m still praying for you.

  14. Sweetie..
    You will have moments in time such as you experienced… it is the normal “reality” process one must go through. I remember my sister having moments at the oddest times…only times in which she could begin to explain. Allow your self to feel them… it is a healing moment that will carry you through to the next.

    Thank you for sharing your journey with us. Reaching out and staying connected is so important.

    Lord… Thank you for our sister Heather… May you continue to bless her and heal her. We know Lord you are in complete control of all things. We find strength and comfort in Your Love… Mercy and Grace!!!!!

    Have a beautifully Blessed Weekend Sweetie!

    **Lots of Love and Hugs**


  15. Keep it up sweetie! you are doing good. i will keep praying and sending love your way!

  16. Heather, I am on my third round with cancer and what I have learned is that no matter what is going on, what seems to be setbacks, or when steps forward are exhausting; that no matter what God is there. There is no place, no time, no experience that God is not present. I imagine being embraced by his love. You are in my prayers – but most of all you are in God’s embrace. Kay

  17. Wow, the pictures are amazing. I also am amazed that it was there and you had no idea. Unbeleivable.

    I pray for you daily and know you must have good days as well as really hard ones. Hang in there. You are an ispiration to us all.

    Have a wonderful holiday weekend with your family,

  18. A Good Friend says:

    My dear friend Heather. I am sorry that I have not been here to read and post and give words of support. I am thankful for the conversations and I am certain your short term memory is hiding around the corner. As always your faith and fight amaze me. I also know the support you are giving to others in their time of need. Give Mark and the kids a squeeze and be patient with yourself the way you are with others.

  19. Heather, I’m so pleased that you seem to be doing so very well. Just a few months ago you were skipping along and now look how much your life has changed and all the new challenges you face. You have incredible strength and I’m amazed at your faith and belief that God is there with you through every second of this ordeal.

    I just wanted to share with you my experience with regard to hair loss. I lost all my hair 3 years ago after the birth of my first son Matt from an auto-immune disease and I know first hand just how scary this whole prospect can be. My hair has not grown back and probably never will, but sweetie when I look at my babies and how blessed I am that they are healthy and I am healthy and we are all happy I could care less that I don’t have any hair. If it makes you feel any better it gets easier to deal with hair loss as time goes by and your hair will grow back.

    I also wanted to let you know that wigs can be very expensive and there are all kinds of people just waiting to take advantage of you so please be careful if you decide to go this route. It’s a personal choice you don’t have to wear a wig if you don’t want to. If you do there is an angel in Rochester NY her name is Sherry and she has founded her business on Christian principals she sells wigs to people who suffer from medical hair loss at almost wholesale prices. If you want to contact her here is a link to her site.

    Good luck, stay strong and I’m still praying for and thinking about you daily.

  20. Wow. Those pictures are amazing…

    I’m praying…continually.

    And Zofran – it was the wonder drug for my son throughout his chemo! It’s expensive but effective…

  21. Heather,
    Although I do not know you, my heart is now kindred with you. I am fighting with and for you. I helped a friend walk through and be completely cancer free. I will walk with you all the way from here in Canada.
    Sending you my love and prayers. Its OK, to not be strong…….. and feel weak and cry. He is strong when you are weak and we will carry you with our prayers.
    I am adding you to my blogger friend list, to recruit more praying friends in Canada.
    I am proud of you! So is the Father.

  22. I also have cancer …. fighting for almost 4 years now. Never give up! You have a beautiful family and I will be praying for all of you..Bless You.

  23. Heather…You do not know me, I too am like others here, drawn to your website by the power of prayer warriors…I felt compelled to write and let you know that I have been praying for you this week (I only found your site 2 days ago) and will continue to lift you and your family to God for strength and healing. I am so touched by your amazing courage and faith-not just dealing with the current situation, but the birth of your daughter as well. I am the spouse of a brain tumor patient-and have been for 8 years-Praise God! We just finished Temodar in February after 18months! I could give you lots of tips to help you through it-it was nothing and I am sure after the radiation is over…it will be a piece of cake! I am a nurse (Pediatric ICU) and I live in Tampa and work at a very big competitor hospital to All Children’s:) Anyway, I had to write and tell you that if you ever need some unbiased info or want to chat about tumors, etc-please feel free to email me at the listing above. You are an angel of purpose- and I can tell that God isn’t through with you yet…keep your chin up and stay strong. God’s people are praying like crazy…let him show his power.
    Sincerely, Wendy

  24. Janet Lynn says:

    Just praying for you & the family

  25. Thinking and praying for you & the battle ahead of you. Isn’t it a comfort to know that all our your days have already been planned by your heavenly Father? Keep that in mind. Love your middle name by the way! 😉 Dawn

  26. continued prayers…


  27. I’ve been gone for a few days and missed some important events! Sorry.

    I’m really relieved for you, in a way. Plans are good to have, and it sounds like the drs have given you plenty of those!

    And, just for the record, I think bald is beautiful!!

  28. Wow, Heather. That is exactly how I had it pictured in my mind after your last picture… I guess that is why. I’m praying that your memory, your healing, your chemo, your spirits, your resolve, your faith, and your SMILE are uplifted and blessed by God. May He return you to full health and astound us all with His Wonders.

    He is with you. You truly are blessed.

  29. I used Zofran through my entire last pregnancy, the hyperemesis was so bad – both through the IV, then in pill form (when I was able to stop vomiting). It was a sanity saver! God Bless :)

  30. Just checking in on how you are doing :)

    Love you!

  31. I came across your website by accident after clicking on a link on another site. I’m glad I saw it. Best of luck to you in your fight! I added a link to your site so that anyone who visits my site (mostly my family) will keep you in their prayers.

  32. Good Luck.

    Keep your strength.

  33. You can do ALL things through Christ who strengthens you.