Where to begin?
The Good News:
My MRI looks “excellent” according to the doctor 🙂 He said that the area where the tumor was looks “very good” and he could barely see the “hole” where the tumor had been (paraphrased, of course 😉 )
Now for the not so good news:
My labs came back really really really low. My platelets are down to 33,000 (low normal being over 150,000) and my WBC is down to 2 (normal being 11). I’ve lost another 10 pounds bringing my total weight loss to 40 pounds 🙁 . They want to hold off on continuing Temodar until the 8th of November, and are lowering my dose from 300 mg to 200 mg per cycle. I will get labs 2x a week until the 8th, just to be sure they are coming back up.
That explains the way that I have been feeling lately. I felt the same exact way last time my platelets were low, but this time I didn’t bruise (odd because last time my platelet count was 55,000 and I had bruises all over). When I mentioned how miserable I am when I am on chemo, they told me that my body obviously responds very well to chemo because it is not only attacking the bad cells, but is also “over attacking” the good (proven in my low labs), and suggested the lower dose of Temodar. I kinda looked at him funny when he said that my body responds good to chemo, because it doesnt feel very good! He said to take the fact that I barely function on chemo as a sign that the drug is working…so that is what I am doing 🙂
I didn’t ask him for sleeping aids this time, because I want to see how I feel with higher platelets under my belt. I can go back and attribute every symptom I had (down to fatigue) to having such low platelets, so I can only assume that not being able to sleep is due to that too.
I am so very exausted, but so very pleased. I was so worried about this MRI and Neurology consult. I knew something was wrong, I just couldn’t figure out what…. Now I know and it really does explain alot! I will get labs from now atleast two times a month until I finish chemo. I will stay on top of my labs and not let them get on top of me, because obviously getting checked once a month isn’t enough.
I am going to go spend some well deserved time with my family! Thank you so much for your prayers and comments, they mean more than you can ever know….