All Clear :)

First and foremost, My MRI was all clear ;) Now I can really enjoy the holidays and not stress over my MRI. Thank you Lord!

Next my speech. I showed up at about 5 minutes before the meeting started, because I didnt want to be too early and look nervous ;) There were about 10-15 Board members there, and I was the “opening act”. I explained that I would be reading my speech because my short term memory is below par, add that with my nervous speech twitching, needless to say they understood!

Here is what I said (If you have read “The Cancer” in my sidebar, you will noticed that I took alot off that page):

Before I tell you my Cancer story, let me tell what defines me.

First and Foremost, I am a Christian. I believe that my cancer didn’t take my God by surprise. I have no fewer days left on this earth than I did before cancer entered my life. I know beyond a shadow of a doubt that, no matter what happens, this ends well for me.

I am the only child of Greg and Darlene and am the wife and best friend of Mark. We have been married for over 13 years.

I am the mother of 3.

Easton, my 10 year old daughter loves everything Hannah Montana and can dance like there is no tomorrow.
My son, Elijah, is 7. He is my blonde haired, blue eyed wonder boy. My youngest daughter, Emma Grace, is 6.
Emma is my miracle. She spent the first 5 months of her life in ICU on life support. On Oct 5, she received her second chance in the form of a heart transplant. She has Autism and a myriad of other diagnoses, but when we look at her, we see a child who loves life, and lives every moment to the fullest. She has lasted 6 years longer than any doctor ever predicted!

I am the founding member of Mothering Through Cancer, at the Wellness Community, a support group for Moms who are battling cancer while raising young children. This is a good time for me to tell you how wonderful the Wellness Community is. Before I was first diagnosed, I never in a million years thought I would have cancer, much less this young. But I do, and I am only 32. I didn’t know the first thing about chemo, radiation, losing my hair, how to deal with my fluctuating emotions and everything in between. While sitting in the waiting room in my radiation oncologist’s office, I saw a flyer on the wall for Cancer Survivors (because all of us are survivors!). I jotted down the number for the Wellness Community and called as soon as I got home. That was the beginning of a beautiful relationship. In our support groups, we actually have other people that are going through or have gone through chemo, radiation, loss of hair, and surgeries. We actually have people who have experienced the same exact emotions that you face when you get the diagnosis of Cancer.

We are a family, a family of Survivors.

Now on to the Cancer.

In April of 2007, my world changed. Id like to tell you that it changed in a good way, and in some ways it did… I knew something was wrong when I had to hold on to the wall to keep the floor from falling out from underneath me. I had been dizzy for days. I finally called my General Practitioner and scheduled and appointment. She thought that I had an inner infection but wanted to do an MRI to rule out fluid in my inner ear.

After my MRI, I went to my parent’s house when I received the call. I had a mass in my brain. It had all the markings of cancer.

I had cancer. In my brain. Me.

In typical “Heather Form”, I wanted it out. I couldn’t stand knowing that it was in my body. If I couldn’t get rid of the cancer, at least I could get rid of the tumor. I scheduled the first of what would become three appointments.
The first was with a local neurosurgeon.

Inoperable, but the tumor looked to be a slow growing tumor, so we could wait and watch.

I was adamant about getting a second opinion, because the first neurosurgeon didn’t really understand the graveness of the situation, in my opinion.

We scheduled my second appointment with a Neurosurgeon at MD Anderson in Orlando.

Inoperable again, slow growing again, wait and watch again.

My world fell out from underneath me.

I should stop here and tell you that I am an avid writer and have a blog. For those of you who are un-familiar with the term “Blog”, it is no different than journaling, only you have an audience. In my case, unbeknownst to me at the time, I had an audience of thousands.

Within a week an online fundraiser was being held for me by people I had never met from all over the world. Their sole purpose was to raise enough money for me and Mark to go to Mayo Clinic in Rochester MN. This fundraiser raised over $17,000 in just 3 days. I was humbled and shocked. Mark and I bought our plane tickets and packed our suitcases. It was a long shot, and they probably wouldn’t have any other answer than the one that had been given to me twice before, but I had to go. I had to hear that it was Inoperable from the #1 Neurosurgery Hospital for me to believe it. It was my last chance, and I was taking it.
So Mark and I loaded our kids up and took them to my parents. We boarded a plane, flew to Rochester and hoped for the best.

We settled into a hotel, kissed each other goodnight and prayed harder than we had ever prayed before. The next morning was my big appointment, and I had pages of questions that I needed to ask.

Operable. Not only operable, but “RIGHT NOW IT HAS TO COME OUT” operable.

The neurosurgeon wanted to know if I was free the following day. Mark and I looked at each other, in disbelief. When we left his office, I called my parents first. I wanted them there, because if someone was going to be cutting my head open and touching my brain, I needed my mommy and daddy. Mark called his mom and she generously offered to come to our home and watch the two oldest. Mom and Dad would be brining our youngest daughter, Emma Grace, with them. We picked a date for the following week, and called to schedule my craniotomy.

Fast forward to May 3, 2007, the day of my surgery. I can’t begin to put into words the feeling of knowing that it just might be your last day. It might be the last meal you eat. It might be the last time you see your husband. It might be the last time you hug your parents. Put on top of that the fact that my two oldest kids were away from me… I just can’t put into words. I wasn’t afraid of dying, I was sad that my possible death would effect my entire family.
Long and short, it went better than they expected. They expected me to have semi paralysis (on my right side) and possibly lose my speech permanently. I woke up and lifted my right arm. “Good” I thought. I tried to speak. Nothing. It took me 4 months to get my speech back and still to this day it isn’t what it once was.

But I was alive, and that in itself was a great thing.

They removed the entire tumor, which was the size of the head of a 9 iron. The pathology came back an Anaplastic Astrocytoma (Anaplastic means Grade III). Grade IV is the worst. Remember what the first two Neurosurgeons said about it being slow growing? They were dead wrong. I would have been dead in 2 years had I not gotten a 3rd and final opinion. I started radiation and chemo simultaneously. I lost my hair and my appetite. But I was alive.

Fast forward to today.

What have I learned?

It isn’t about the cancer, it isn’t about what it has the ability to do to my body, it isn’t about the treatments or the part of me it has taken away… its about the journey. Its about rediscovering the parts of myself that I never ever knew or dreamed existed, and giving them room to grow and room to take flight. It’s about seeing life through cancers eyes and being better because of it, being more whole and more alive despite it.
It’s about living.

Sure there are going to be days that I feel like a Mac truck just bulldozed over me. There are going to be days when I look in the mirror and think “Who is that person, and what did she do with my hair?” But there are days that I am fully alive and energized too, its part of the journey. It is part of life. But it’s not the only part.
It’s not the defining part

I am still a mother.
I am still a wife.
I am still a daughter.
I am still the same Heather that I was before I found out that I had cancer, just a lot more mature and a heck of a lot less naive. I still have the same heart, the same dreams and the same desires. I am still me, and cancer can’t take that away.

They were all very impressed with my speech, and my ability to tell my story. They asked many questions about how the wellness community has helped me, and what they could do to bring young people like myself in (because cancer is no longer a “old persons” disease). We discussed the benefits of support groups and the things that were holding them back. All in all it went way way better than I had hoped or expected!

Today was suppose to be Emma’s clinic visit, but it was canceled. It is being rescheduled for January 17th, so keep that in your prayers. She is doing wonderful, and luckily the antibiotics have kicked out what ever she had.

I am off to pack for our trip to Virginia, but wanted to thank you oh so much for your prayers and support. I have received many many Christmas cards for my cyber-family and it really warms our heart to know that my story, our story has touched you so deeply. So thank you

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Comments

  1. Rhonda says:

    great job Heather! you are a true inspiration, God has great plans for you, the newest is cyber world touching so many with your story. have a good safe trip and Merry Christmas from Kentucky.

  2. Sharon says:

    Clear MRI….not much better gift to have in this year’s stocking!! FANTASTIC news!! God is so good. Your story was great and I am sure you made a difference to those listening (and us reading). Wishing you a safe journey to Virginia and a wonderful Christmas.

  3. Kris says:

    :mrgreen: Good for you Heather! God bless you and your whole family this Christmas season!

  4. Annette says:

    Oh I’m so glad you put this speech down on the blog.

    Praying for you-
    Annette

  5. Wendy says:

    Wow, Heather, I am praising God for you. What a testimony you have been to so many. A clear MRI – great news! I hope you have a wonderful Christmas w/your family!

  6. Paula says:

    Heather,
    How wonderful!!!! Thank you for sharing! I hope you and your family have a truly wonderful Christmas!
    Many Blessings,
    Paula

  7. Gina says:

    That is great news and wonderful answers to all of our prayers! Have a wonderful Christmas!

    ~Gina

  8. Molly says:

    Dear Heather,

    Oh, that’s just the best news and exactly what I was praying for you (: Now you can really enjoy Christmas without worrying. I hope you all have a safe trip to VA and the best most relaxing Christmas ever. You’ve certainly earned it (: I’ll be keeping Emma in my prayers too, she is SO cute! I have an Emma myself (: Best wishes to you!

    Molly (:

  9. Kiesha says:

    Yay! The speech was great. I hope you and your family enjoy your trip to Virginia and make memories that you will cherish always. Merry CHristmas!

  10. MamaLee says:

    What a wonderful Christmas present, to get a clear MRI.

    Many more blessings on top of the blessings you already have…

    Merry Christmas. xoxo

  11. misty says:

    praise God!!! Truly, praise God…

  12. Laura S. says:

    Heather,

    I’ve been following your blog since October but haven’t taken the time to leave a comment. I am so glad your MRI came back normal. I hope you enjoy Christmas in Virginia (that’s where we live too!). May God continue to be glorified through your life’s story.

    Blessings

  13. Praising God for your clear MRI! Praying your story touched the board members as much as it touches all of us. Have a blessed Christmas with your family!

  14. Mrs. I. says:

    Heather, what wonderful, fantastic news about your scan!!! PTL!! I was praying for you during the time of your speech and I’m so glad it went well for you. I know your story had an impact on your listeners. Thanks for posting the speech so we could read it. Also, glad to hear that Emma Grace is feeling better. Now, you can go off to VA and enjoy every second!! Will be praying for safe traveling mercies for you and yours!

  15. Renee says:

    I am excited for your good news. Thanks for sharing your speech on your blog. We will be praying for a safe trip and a memorable family time.

  16. La says:

    Heather~
    I loved your speach, I am in tears right now. GOD BLESS YOU AND YOUR FAMILY!! I am so glad you got good news and I hope you all have a wonderful and Merry Christmas.

    LA from Mississippi

  17. Ruth says:

    I have read your story form the beginning of the knowledge of your cancer but that speech had me in bits. Thank you for posting it on your blog :) Have a :smile: lovely Christmas :)

  18. weavermom says:

    Beautiful.

  19. Shalee says:

    God is good in all things, cancer and noncancerous! Beautiful telling from a beautiful person.

    Merry Christmas, Heather and have a wonderful time in Virginia!

  20. Laura says:

    I had never heard the whole story from the beginning. Thank you for posting your speech so that I could understand the whole pictures. SO glad you were blessed with a clear MRI.

    Have a wonderful Christmas with your family!

    Laura

  21. Sher :) says:

    Thank you Lord! And bless you Heather.

  22. Michele says:

    Wonderful news…beautiful speech!!!! Have a wonderful blessed Christmas, Heather!

    Michele in Ohio :smile:

  23. Jennifer says:

    You brought tears to my eyes. I am just elated that your MRI came back clear! God is so good!

  24. Kerry says:

    Thanks so much Heather …from those of us who don’t let cancer define who we are!!
    I am so thankful your MRI clear. God is so good!! Have a wonderful trip…Merry Christmas!!!

  25. April D. says:

    First, WOOHOO for a clear MRI! So happy to hear that the results were so wonderful and that you can leave your worries behind for the holiday!

    They were impressed with your speech???? Of course they were!!!! I was impressed with it and I have been following your journey since Emma. :razz:

    Have a great vacation and holiday!

  26. Dad says:

    “Isn’t She Lovely”

    Isn’t she lovely
    Isn’t she wonderful
    Isn’t she precious
    Less than one minute old
    I never thought through love we’d be
    Making one as lovely as she
    But isn’t she lovely made from love

    Isn’t she pretty
    Truly the angel’s best
    Boy, I’m so happy
    We have been heaven blessed
    I can’t believe what God has done
    Through us he’s given life to one
    But isn’t she lovely made from love

    Isn’t she lovely
    Life and love are the same
    Life is Heather
    The meaning of her name
    Darlene, it could have not been done
    Without you who conceived the one
    That’s so very lovely made from love

    I Love You Bo!

    Dad

  27. Kathie says:

    God is soooo good.

  28. Tamara Cosby says:

    You are amazing.

  29. Tamara Cosby says:

    Your Clustr Map has to be the coolest thing since sliced bread! :)

  30. Sunshine says:

    I LOVE the speech. I have not posted a comment for a while…but I think of you and your family often. I pray that you have an amazing Christmas and know that so many are inspired by your story and that you are such a blessing to so many. Sunshine

  31. what a wonderful speech! You must be so relieved that is over though, huh?

    And I am so glad that you were able to get those results back right before the holidays.

    Thinking of you,
    Karla

  32. Kay says:

    Such wonderful news for you and yours! I am a relatively new reader. You have such an uplifting blog!

    Merry Christmas!

    Kay

  33. gracie says:

    I wish I could have heard you speak it… but even so, your speech was powerful. Wonderful news too!!! Wishing you and your precious family the most blessed Christmas ever! :cool:

  34. A clear MRI – wonderful news, Heather. I’m sure you’re story went over very well – it’s truly an inspirational story and you are so open and honest about what you’ve been through, physically and emotionally.

    Merry Christmas to you and your sweet family.

  35. Yay! Wonderful news and many congratulations on your clear MRI! What a terrific early Christmas present.

    And I love your speech. You are such an inspiration. God bless.

  36. Cathy says:

    Thank God for the good report, Heather! You are totally awesome with that speech. Have a wonderful time with your family and a Merry Christmas again. :o )http://www.especiallyheather.com/wp-includes/images/smilies/icon_biggrin.gif
    :grin:

  37. Cathy says:

    Guess I transferred the little smiley wrong!

  38. Janice says:

    The Lord put the perfect words in your mouth. What a true blessing “knowing” you has been in my life. Merry Christmas to you and your adorable family, Heather!

  39. Leah says:

    Praise the Lord, Heather!! :grin:

    I have commented here before, but today I wanted to tell you a little something. Your speach made me think. :!:

    I discovered your blog right around the time you discovered you had cancer and have been a faithful reader ever since. I pray for you, and for your family.

    Well, last month I was having a lot of dizziness so I went to my chiropractor thinking it was just my neck “out”. He was concerned and sent me immediately to get a series of MRI’s and MRA’s done. I had a few days of tests and some scary times while waiting to hear. The terms they used frightened me a lot. “accoustic neuroma”, “possible tumor”… I was scared! And many, many, many (countless!) times in those few days I thought about how you’ve handled these past few months. How God has held your hand through it all and how you are touching so many people with your testimony. God used you to calm my fears! The good news is that my tests all came back clear and in my case it WAS fluid in the eardrum and also my back and neck needed adjusting. And so my days continue on in “normal” fashion. Yet I know the words you speak are true. My days have already been numbered by my Creator. And I’m okay with that.

    God bless you and Merry Christmas!!
    ~Leah in Alaska

  40. dcrmom says:

    Wow. I knew all this, but to see it summed up so succinctly… Heather, you are a walking miracle. Merry Christmas to you and your family.

  41. Teresa from SC says:

    Merry Christmas Heather and family. I am blessed by “knowing” your story.

  42. i am so truly happy for this blessing for you Heather. MERRY MERRY MERRY CHRISTMAS!
    caringbridge.org/visit/marianne

  43. Tina says:

    Thank YOU, Heather. Again, I cannot tell you how much you and your family have inspired me. After a long hiatus from church, I am going to go back. It’s a long story but I truly believe that God has used you yet again. I could just hug you. Much love and have a VERY Merry Christmas. Blessings to you and yours.

  44. Laurie says:

    Perfect MRI, perfect speech, perfect season to rejoice in perfection. May your Christmas be the most perfect one ever, and I know it will be. Your dads comment is too precious for words. We should all be blessed with dads like him!! Praying for Emma to be fine throughout the holidays and continue to flourish as she does. You have been such a blessing to so many, and just think, you have just begun. God has such big plans with your precious life. HUGS and Blessings to you.

    Laurie in Ca.

  45. Dee Dee says:

    Beautiful!

  46. Paul says:

    Heather,

    Thank you for sharing this and for being such an inspiration to those of us who are survivors. So many things you shared, I could identify with.

    Thank you for sharing from the heart, for being real and for exalting our Lord.

    Indeed He was not surprised and like you, He brought me through it all and Hill Country Thoughts – Coffeecup Ministry was birthed from that!

    Merry Christmas and blessings, from the Hill Country of Georgia!

    Writing for the King,

    Paul

  47. LeeJo says:

    Praise God. Merry Christmas!

  48. crystal says:

    Beautiful.

  49. Karen D. says:

    God is good!

    Have a wonderful holiday. xoxo

  50. Lauren says:

    Hi Heather,
    I am reading in California, and I have been following your blog since this summer. I feel like I know you! My friend Cindy posted it on her blog (Logan’s race )as one of her favorites. Her sweet 6 year old daughter passed away of Aplastic Anemia in March. I have been encouraged by your faith and I always hoped I would respond the same way as you and Cindy in a trial. Two days ago, my 37 year husband found out he has cancer, so now I will be walking this road too. Thank-you for your example. It means a lot to me even though we have never met. I know God is faithful to you and He will be to me also. Praying for you,
    Lauren