And so it begins…

The House of Representatives passed this bill last week:

H. Res. 1124

In the House of Representatives, U. S.,

May 21, 2008.

Whereas brain tumors are the leading cause of death from solid tumors in children under the age of 20, and are the third leading cause of death from cancer in young adults ages 20-39;

Whereas more than 190,000 people in the United States are diagnosed with a brain tumor each year;

Whereas of these tumors, approximately 40,000 are new cases of primary brain tumors and approximately 150,000 are metastatic brain tumors, where a cancer spread from another part of the body to the brain;

Whereas some 10-15 percent of all persons with cancer will experience a metastatic brain tumor at some point;

Whereas brain tumors may be either malignant or benign, but can be life-threatening in either case;

Whereas treatment of brain tumors is complicated by the more than 120 different types of such tumors;

Whereas national priorities for dealing with brain tumors include–

(1) supporting research programs at the National Cancer Institute;

(2) strengthening brain tumor research program leadership at the National Institutes of Health, including the National Cancer Institute; and

(3) strengthening access to critical healthcare services for Medicare beneficiaries;

Whereas the North American Brain Tumor Coalition established a Brain Tumor Action Week during the first week of May 2007 and each subsequent first week in May;

Whereas the Lori Arquilla Andersen Foundation is recognized for their efforts to promote awareness of the life-threatening effects of brain tumors, to advocate on behalf of brain tumor patients, and to raise funds for medical research;

Whereas Accelerate Brain Cancer Cure is recognized for their work to bring more treatments to patients, stimulate research and development and otherwise support the accelerated development of new therapies for brain cancer;

Whereas the Goldhirsh Foundation is recognized for being devoted to providing support for innovative brain tumor research with grants awarded through The Brain Tumor Research Awards Program and The Brain Tumor Funders Collaborative;

Whereas the American Brain Tumor Association is recognized for their work to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families;

Whereas The Brain Tumor Society is recognized for their work to find a cure for brain tumors, improve the quality of life for brain tumor patients, survivors, and their families, and raise funds to advance research projects that enhance treatments and find a cure;

Whereas the National Brain Tumor Foundation is recognized for their work to find a cure for brain tumors, and for giving hope to the brain tumor community by funding meaningful research and providing resources and education to patients;

Whereas the Tug McGraw Foundation is recognized for their work to support research that will improve the quality of life in the physical, social, spiritual, and cognitive areas of patients dealing with brain cancer;

Whereas the Childhood Brain Tumor Foundation is recognized for their work to strive to serve the needs of families and children with brain tumors in hopes of improving the quality of life and finding cures for pediatric brain tumors through funding basic science or clinical research;

Whereas the Children’s Brain Tumor Foundation is recognized for their work to improve the treatment, quality of life, and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors;

Whereas the Pediatric Brain Tumor Foundation is recognized for their work to eradicate brain tumors, providing support for families, and increasing public awareness about the severity and prevalence of childhood brain tumors;

Whereas the Southeastern Brain Tumor foundation is recognized for their work to instill hope, knowledge and comfort by offering information, education, and support services to all affected by brain tumors;

Whereas the Oklahoma Brain Tumor Foundation is recognized for their work in meeting the needs of Oklahoma families, caregivers and patients affected by brain tumors, through education, advocacy, research and service;

Whereas the Michael Quinlan Brain Tumor Foundation is recognized for their work to support those affected by brain tumors through educational, emotional, financial, and spiritual services;

Whereas the Brain Tumor Action Network is recognized for their work to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends;

Whereas May would be an appropriate month to recognize as National Brain Tumor Awareness Month; and

Whereas there is a need for greater awareness of brain tumors and brain cancer on the part of the public, including awareness of symptoms and warning signs, treatment options, research needs, and public policy implications: Now, therefore, be it

Resolved, That —

(1) it is the sense of the House of Representatives that there should be established a National Brain Tumor Awareness Month; and

(2) the House of Representatives applauds the actions of medical professionals and other caregivers, researchers, patients and their families, and others who strive to combat and raise public awareness of brain tumors and brain cancer.

Attest:

Clerk.

Notice the date: May 21st. Just one day after Senator Kennedy was diagnosed with brain cancer. Selfishly, brain cancer survivors hoped this would be what it took to bring brain cancer to the limelight and to get the funding and recognition that we so desperately need towards finding a cure. Thank you to all of the organizations listed above who spoke so loudly.

They finally heard us.

“We don’t know what causes brain cancer…
But we do know what it effects”

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Comments

  1. Teresa from SC says:

    Enough said….

  2. Whereas:………………… I love you!

    Dad 😉

    Dads last blog post..Check Out The Sermon Downloads :)

  3. Betty in Oklahoma says:

    WOW! That is a powerful message, Heather.

    Betty in Oklahoma

  4. Hope it will get more attention/funding and the recognition it deserves.

  5. Heather-
    There has to be a voice, with brain tumors, autism, AIDS etc. Like I said the other day, I don’t care for Kennedy’s political point of view on things but as a human being he has a soul- what if it we’re my dad, my mom my child- go past your feelings and we have to pray for him and for a cure for these different diseases.
    I also have a daughter with Autism and one with HIV- we have been through it….churches don’t us, but I am so grateful that Jesus wants me and my children, and he died for me..and he died for Ted Kennedy. Cancer is a devastating thing and it takes a toll on families so we need to pray for his family too.
    I am praying for you Heather and this is your post- say what you want!!! LOL!!!

  6. Fantastic.

    Staceys last blog post..Zoooooooooooooo

  7. YOU GO GIRL!!! I have been reading YOUR blog for quite a while and there is NO DOUBT in my mind who you are and what you stand for.

    You are entitled to your opinion and where better to express it than YOUR blog. I admire you for all that you represent. You are strong even when you have your plate full. The problem in America today is our inability to speak clearly and boldly without “offending” someone.

    I will be forever politically “incorrect” if that is what I am called when I stand up against things that I know to be wrong. I WILL NOT pretend to be accepting of a homosexual lifestyle just because it might hurt someones feelings, etc. etc. GOD’S word is clear. It might just be your words that change the thinking of someone that may have been swayed the wrong direction.

    Stand FIRM, you already are strong and I am proud of you for speaking your mind and for your compassion and kindness of the illness of another regardless of who he is and where he stands.

  8. So sad that it took this to make it known, but what a blessing that it now is. Thanks for sharing this. :)
    JoAnn

  9. WOW!! That video brought many tears to my eyes. I need to share it with others.

    Ericas last blog post..Weekend of Fun

  10. I’ve spent the last 16 years of my life wanting brain cancer to be “okay” for people to have. Ever since my mother was diagnosed, it’s felt taboo. Thank you for helping speak out. I think

    Saras last blog post..Because I want to eat them…

  11. I’ve spent the last 16 years of my life wanting brain cancer to be “okay” for people to have. Ever since my mother was diagnosed, it’s felt taboo. Thank you for helping speak out. I think that video is going to make me cry for a long time.

    Saras last blog post..Because I want to eat them…

  12. Your Dad cracks me up! I wanted to find a “whereas” comment to write, but he was too fast for me.

    That commercial? not gonna be your story! Standing in prayer on my knees for you, Heather.
    Love you much in Him!
    holly

    holly smiths last blog post..Keep Praying for Ethan

  13. Wow. That’s awesome!

    The video made me sob. I was thinking the daughter was turning 21 and had brain cancer…and I was like oh that poor mother, and then she went to her babies side and, oh my, Oh My.

    :*( Love to you girly.

    Saras last blog post..Alex lost his first tooth!

  14. It may just be me, but I am rejoicing in the selection of it being the first week in May! Perfectly chosen! That puts it right up there with the National Day of prayer, and your anniversary. Looks like God is in control to me.

    Rejoicing in the noticing , praying for the outcomes.
    Because of Jesus, Bobbie

    bobbies last blog post..Tightwad Tuesday

  15. Wow! What an amazing video. I admire you for the message that you share.

    Overwhelmed With Joy!s last blog post..Let me see a show of hands, who’s going to see this movie?