First, thank you all so much for your prayers. Emma is doing slightly better as of yesterday, she was taken off of oxygen so that is good 
Her Echocardiogram looked slightly better regarding her function, so the Milrinone is working. The fluid around her heart and lungs is decreased, but there is still alot there. They have upped her lasix and lowered her steroids. This is good and bad news. It almost removes the possibility of viral infection because of how quickly the improvements were seen. The Cardiologist that saw her yesterday (remember it is the weekend, so we will see the Transplant Cardiologist on Monday) said that he was 95% sure that this was severe acute rejection. This is not the news we had hoped for, but we will work through it. She is scheduled for a heart catheterization and biopsy on Monday, they will also be looking at her coronary arteries because in 2006 it was discovered that she had transplant related coronary artery disease (Long-term survival of heart transplant recipients is limited by the development of transplant coronary artery disease). If it is the coronary arteries, that would be very bad news. There is no treatment other than medication (which most she is already on) and when they stop working the only other option is another transplant. We dont even want to think about that right now.
So please pray for us Monday, Pray for her. She is 3rd on the list for the OR, so it should be anywhere from 12-3pm, depending on the other two ahead of her. I am so thankful that this chemo cycle for me was so very easy, that was one prayer the Lord answered.
And He isnt done yet, we fully believe that.
“The LORD your God is with you,
he is mighty to save.
He will take great delight in you,
he will quiet you with his love,
he will rejoice over you with singing.”
-Zephaniah 3:17
Thanks for the update. Ive been thinking about your little girl all night. Im praying for her, and for all of you. Praying for wisdom for the Drs. to know the best way to treat her.
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Thank you for the update, you have all been on my mind ever since I heard.
We are praying for your family and precious little Emma. God has her in His mighty hands, and will see you through. May you feel peace flood you all during this time.
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Thanks so much for taking the time to update. It means a great deal to us as well. If you need ANYTHING, give me a call.
((hugs))
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Continued prayers for Emma and your family, Heather.
Thanks for the update, and will continue to pray
I’ve been waiting to hear from you to find out what’s going on. I’m glad there’s some good news, as cautious as it is. I’m still praying for Emma and her heart as well as for you, your husband, and your family that you all have the strength to get through this. Thankfully your chemo was easy this go around, but I’m praying the cancer just goes away completely so you don’t have to deal with it anymore.
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Praying for you and your family, especially your little Emma. . . I know you hurt when your kids hurt. . .
God is faithful. . . He will hold all of you in the palm of his Hand. . .
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Praying for you all
Mary
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You are all in my prayers Heather and thank you for the update. I will be praying for Monday and for Emma to continue to improve. God has her in Her hands and will keep her in His care. I am so thankful that this round of chemo has been kind to you. I have been praying for this very thing!! You are all loved by so many and are covered in prayer. I love you Heather.
Laurie in Ca.
Still praying and believing for the best results! :heart: Thank you for the update and it’s GREAT news to hear that your chemos wasn’t that bad! That God answers prayers and will keep on
FOR HE IS MIGHTY TO SAVE!
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We continue to pray, Heather, that the Lord will snuggle your entire family up in his arms and bring healing to Emma’s heart.
Still praying for your princess…
Keep holding on to Jesus, and we’ll keep holdin you all up in prayer?
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Praying and spreading the word to pray.
Love you all MUCH in Jesus!
holly
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Your family was on my heart all last night. Still praying in Hawaii.
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Thank you for the update, Heather.
Praying God will continue to touch sweet little Emma with His healing hand and that you will get a good report from the tests on Monday.
I’m so glad your chemo was easier on you. That is a beautiful verse you quoted. Praying for you all ~
(((((Hugs)))))
Cathy
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I am praying for your very special little girl, and your family! Sue
I am praying for your little girl. Thank you for keeping us updated.
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Heather,
I just read your last couple of posts and will definately be praying for you and sweet little Emma. Know this, my dear sister, that the Lord loves you so much, is so very good, and faithful…keep trusting, drawing closer and closer to Him, and hold on to the promises of His precious Word. You stand on the Rock that never trembles!
love and prayers,
Jaynee
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I am continuing to pray for you and your family.
JoAnn
Still praying.
Thank you for sharing your tremendous faith,wisdom and strength.
Heather….praying for little Emma and all of you…..
and asking others to do the same……
blessings
donna
He truly is mighty to save. May God’s healing power fall down upon all of you. Continued prayers…
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:angel: Dear Heather,
God is in control, I had practice last night at our church with our praise team and we all got together and prayed for Emma Grace and for you. Will pray for a good report and for a miracle. Our God is an AWESOME GOD!!!!
First off Big Big (((HUGS))) to you all. I will definitely keep you all in our prayers. Please let us know if there is anything at all we can do.
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Heather,
Thanks for taking the time to update on Emma. She’s been utmost in our prayers and thoughts since we read your last post. Don’t forget Ephesians 3:20
) (We’ll be looking forward to your next post.)
Heart hugs,
Heidi Hesoun
I will keep on praying Heather, have been all day for Emma, you,Mark and the other children,
Will take the time to pray at the hours that Emma will be in the OR
Praying for your family, Heather. I have been away from my computer for a while and started praying as I have scrolled down the posts. This verse is one my favorites. Beth Moore shared this about this verse. The part where it says He will quiet you with His love, is a word picture of you sitting on Gods lap and he is rocking you and “shh shh shh’ing you like we do our children. So I life you up to that place in Gods Big rocking chair and thank HIm in advance for quieting your fears and troubles with His love.
Praying in Kansas City,
Stephanie
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