Biopsy Results…
June 3, 2008
The biopsy indicated that it wasn’t rejection (If you are familiar with heart transplant biopsies, it was a 0), so that leaves viral infection (which we wont get the results back for atleast two weeks, and even then it isn’t conclusive) or Coronary Artery Disease. The true test will be how she handles coming off Milrinone and lasix tomorrow. We will know Thursday when they do an ECHO.
If she crashes and burns (meaning if her heart goes back to the way it was when she came in Friday), that means that her coronary arteries are worse and they will put her back on Milrinone, which means she wont be coming home until her heart function improves off of this drug, and it may not improve this time. Last time she did this in 2006, she was in the hospital for 2 months and worked up for another heart transplant. We have been so blessed these last two years that it has been controlled by medication (Coreg). She is on the maximum dose of this medication for her weight so upping it is not an option.
If her heart remains the way it is right now (her normal baseline), it means that it was viral and we will be going home Thursday night, just in time for her birthday (June 5). Either way, she will be spending her birthday in the hospital. We are hoping for the best Birthday present ever when they do the Echocardiogram.
So, hurry up and wait seems to be the motto of this hospital visit. They were 95% sure it was rejection, so to find out it wasn’t leaves alot of unanswered questions. They are leaning more towards viral infection compared to her Coronaries, but they haven’t ruled out the coronaries either.
So there is the update as promised. Sorry for the long delay, we literally just got the news an hour ago and have been updating family and friends.
Keep praying, We know God isn’t done yet.
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45 Responses to “Biopsy Results…”
I would love to hear from you!
I’m so glad you updated. I can’t imagine how you must be feeling. On pins and needles, I’m guessing. Hang in there.
Kim Priestaps last blog post..Steve & Little Man’s canoe trip
Dear Heather,
Thanks for the update! I’ve been checking your blog off an on to see how little Emma is doing. I’ll still be praying for her and that her heart function improves and she can come home. Bless her little heart, she’s such a cutie. I hope you’re all doing well and holding up under the circumstances. God bless.
Molly (:
One step at a time . . . but oh how hard that must be. I’ve just finished re-reading Emma’s story after checking for an update. And now, God bless you, you’ve kept us posted. Thank you so much, Heather. Still praying in California!
I hope your daughter starts to get better soon. My father went through quite a trip as the doctors tried to get rid of his viral infection. They thought he was going through rejection at first but it turned out that his donor heart had CMV (? I always get that wrong) and it was making his body feel as if he had mono times 1000.
My dad his heart transplant the same day I had my first tumor removed last year. We were both in surgery at the same time but at different hospitals.
I’ll keep both you and your daughter in my thoughts and prayers.
Lisas last blog post..My Name Isn’t Kennedy and I Don’t Have a V.I.P Card
I just wanted to tell you I’m thinking about you an praying for you all tonight.
catnips last blog post..nervous stomach
(((HUGS))) Our family is keeping Emma, you and your family in our prayers.
It’s good to hear the update. I pray it’s the lesser one.
JoAnn
I am still praying for all of you. I have asked all of my pals who pray for me to add you to their prayers as well. Lots of prayers are being said for you in Raleigh tonight.
Thanks for letting us hopefully share a little fraction of your burden, Heather. You are a wonderful mother and we are blessed to go along this journey with you!
Prayers being lifted up in Tennessee!
Love,
Katie
Katiebod (Roses are Red, Violets are…Violet)s last blog post..A Special Kind of Love
Still praying for you all. Poor Sweet Emma
Saras last blog post..What I learned today.
I’ve been praying for you and Emma since I found out about y’all last week. I think you are the strongest person I know, right up there with my mom.
Vickis last blog post..The Princesses Are Sexualizing My Daughter
Praying for your whole family, Heather- you and Mark, sweet Emma Grace, and Easton and Elijah.
Love from Illinois-
Deb
Praying for best case scenario!
oh amandas last blog post..Box o’ Cupcakes
Just letting you know I’m praying for all your family. Will check back for updates. Here’s a hug, too {{Heather}}
Vicki @ Windowss last blog post..Blog Tour: Meet & Pray for Mike Dellosso
Thank you for the update! She’s been on my heart since I found out!
((hugs))
Lundies last blog post..June NaBloPoMo - Day 3
Still praying!
You and your family are always in my thoughts and prayers!
Random Army Wife
Glad you were able to update, I have been checking. I will continue to lift your family in prayer.
Michelles last blog post..Not Good!
Thank you for the update. May the peace of God rule in your hearts. We are holding your family up in prayer.
Still praying for you all! Thanks for the update!
Gina Dunns last blog post..Graduation Ceremony..
Thank you for the update, Heather. Praying God will keep touching little Emma with His healing hand. Praying for a good report , and for you all. Hugs and love ~
Cathys last blog post..More Thoughts
I’ve been praying continually the past two days. Love your darlin’ girl and am praying for that BEST Birthday present for her.
Lord, You are good and what You do is good. Bless sweet Emma Grace–I know she’s Your very favorite! Heal her Father. Heal her and get her home soon.
With love in Jesus,
holly
Holly Smiths last blog post..When Among Life’s Billows
Keeping Emma in our prayers Heather.. I know its sure not easy but I know its in God’s hands..Wrapping your family in prayer.
Kerrys last blog post..Interesting Article
Maybe it WAS rejection… and God intervened. That’s my prayer - that whatever it was, He has healed.
judys last blog post..He even loves karaoke
Praying for all of you! You are loved and cared for, even by those who only know you through the blog world.
Taylor Vaughans last blog post..
Praise the Lord! Emma Grace is still a little miracle girl. I’ll keep praying for her total recovery. I’ll also include you, Heather, of course. Your family is an inspiration and we all care about each one of you.
Betty in Oklahoma
Continueing to pray for your sweet little one!
Mary
Owlhavens last blog post..Review week– prizes coming!
I pray that was the good news that you wanted even if it’s inconclusive.
Heather…it would be a really GREAT birthday that she could go home WELL! Keeping on praying!
Thanks so much for the update, I checked quite a few times and then just prayed when there was nothing. Complete healing of arteries, viral or whatever is the MIRACLE we expect! PTL:heart:
Peggy@Mazes, Messes, & Miracles….s last blog post..TRIBUTE for TUESDAY
I really hope Emma has the best Birthday presant yet.
I am so hoping it is not her coranary arteries. She seemed to get unwell so quickly so am hoping this is just a viral problem, there certainly are a lot of nasty ones around this year. Those of us who are immunosupressed are more at risk than most but it so hard to avoid everything.
Thinking of you all the time.
Lots of Love Carolynn
Well, we’ll just keep praying that it’s a viral infection. Poor little thing! It’s good that it’s not rejection, though, right? Now just to get the coronary artery issue out of the way.
She’ll make it through - she’s a tough little girl from all I’ve read of her!
Lori ~ Simple Life at Homes last blog post..WFMW - 50 Ideas for Family Fun!
I stubbled across your blog and wanted to extend more prayers your way. Praying for healing in Emma and strength for your family.
Cynthias last blog post..Happy Gotcha Day, Jack!
I will keep praying for you, your daughter and and your whole family. May God lead the doctors to do the right thing. Peace - D
D / Mommas last blog post..Wordless Gettysburg
As much as this result caught the doctors off guard, I know it didn’t catch God off guard. And I with you am placing precious Emma in His capable hands. I will continue to pray with you.
Shelleys last blog post..Compassion
Thinking of you and praying for Emma. I will keep checking for updates.
Thanks for the update. Glad to read it’s not rejection, sorry to read there are still unanswered questions. Here’s something I have been saying to myself alot lately: The Lord knows….
Still praying.
Keep the faith.
Still praying Heather
Praying…
HennHouse (Karin)s last blog post..Overheard at the HennHouse
Heather and Mark -
i live in Tampa and work in St Petersburg.
if you need anything while you’re at ACH/McD house, i can easily drop off - take out dinners? grocery store run? quarters for laundry? DVD rentals? i realize offers from people you dont know can be weird…it’s the least i can do for the blessings i’ve received reading your blog.
thinking of you and your emma throughout the day.
take care, linda
Ohmygoodness! I missed the initial post. My prayers are going up for Emma and your family.
Still praying!
God is good ALL the time and all the time God is good!!!
Heather,
The verse that comes to me is, Trust in the Lord with all thy heart and lean not on your own understanding but in all your ways acknowledge HIM and he will direct your paths!!! Sometimes we don’t know the WHY’s? But HE does and he will take care of Emma Grace and you…he loves her more than anyone and he will answer our prayers concerning her. I am praying for you too, for God’s strength and for peace. You both are miracles!!!
Praying. Man, Heather, you are probably slated to be a boss-lady in heaven. You have dealt with so much! What an honor that God knows He can count on you even when there is “pain in the offering”.
My prayers are with you and yours. Hope your baby girl is home close to her birthday and that all news is good.
sprittibees last blog post..Wordful Wednesday: Winds of Change
I have been praying and will keep on.
I have been praying for you and your family, that you will get have the strength and faith to keep it together, that in this God would grant you peace, that your faith in Him would not waiver, that you would get up again and trust Him.
I cannot imagine how difficult this is for you and your family and little Emma, I have been praying that God would give her peace.
Gods word is truth, He cannot lie and when we depend on Him He just has to show His presence. I am praying that you will see it. I am praying that I will as well as I have to see that He is there as He sais He is, for you, your family for all His children.
Hi Heather,s last blog post..
MAY YOUR BIRTHDAY PARTY BE LOTS OF FUN>>>MAY YOU HAVE ENOUGH OF “YOU” and STAMINA and STRENGTH TO ENJOY ALL OF IT>>>MAY YOU ENJOY THE VISIT WITH YOUR BROTHER AND SISTER!!!>>>MAY GOD GIVE YOU THE BEST GIFT….A MIRACLE
I can’t remember how many candles you need so the
are for them and that your
Lots of PRAYERS going up for you and LOTS of LOVE & HUGS!
to all of you, Heather, Mark, Easton, Elijah and FAMILY!!!
Peggy@Mazes, Messes, & Miracles….s last blog post..WORD on WEDNESDAY:WOW
IT’S JUNE 5th….HAPPY BIRTHDAY EMMA!!!!
:heart
has a special touch of saving GRACE…Princess EMMA GRACE…child of the KING…may HE grant your every wish and those of your mom & dad!!!
MAY YOUR BIRTHDAY PARTY BE LOTS OF FUN>>>MAY YOU HAVE ENOUGH OF “YOU” and STAMINA and STRENGTH TO ENJOY ALL OF IT>>>MAY YOU ENJOY THE VISIT WITH YOUR BROTHER AND SISTER!!!>>>MAY GOD GIVE YOU THE BEST GIFT….A MIRACLE
I can’t remember how many candles you need so the
are for them and that your
Lots of PRAYERS going up for you and LOTS of LOVE & HUGS!
to all of you, Heather, Mark, Easton, Elijah and FAMILY!!!
Peggy@Mazes, Messes, & Miracles….s last blog post..WORD on WEDNESDAY:WOW