Back on Milrinone…*Updated*

June 16, 2008

Dr K just came in and said that the cardiologist that prescribed the Milrinone didnt know Emma, and was just going by her BNP numbers… Hers are always high because of her Coronary Artery Disease.  He is going to cut the dose in half today and stop it in the morning.  We should be discharged tomorrow sometime before lunch.. 

:)

_____________________________________________

Her BNP was 1500 (600-1500 means overt congestive heart failure.) so they decided to put her back on Milrinone to give her heart a break.  Her Echo looks the same as it did at discharge on the 5th of June, so that is good. At her clinic visit last Monday, her regular transplant cardiologist told me that as long as her heart function looks the way that it did on that visit, he is not concerned with her BNP, it is just one part of the puzzle and not to be too concerned with that number.  (He is not at this hopsital, we are at ACH and he is in Gainesville at Shands..  Shands is a 4 hour drive for us).  I am hoping to talk to him this morning on the phone.

Otherwise, she looks great! I was shocked when the nurse came in and said she was going to start her Milrinone.  That is a big drug to use before telling us what they are doing and why they were doing it, especially when we were told that they were just going to “observe her”.  Mark talked to the Cardiologist last night on the phone and politely told him that we would like to be informed when changes are made.

They started IV antibiotics last night - I hope to find out what they put her on when I go back. She is requesting her standard Pancakes and Bacon for every meal :)

That is the update for this morning.  I will update again once I can get back to the room.. and can speak to a doctor..(The nurses are doing change of shift)  I hope and pray that this wont become an extended stay like it did last time, I can not see why it would. 

Today she was suppose to start Summer School :( 

Thanks for the prayers and support…

 

If you enjoyed this post, make sure you subscribe to my RSS feed!

Comments

Note From Heather: All comments are welcome, but I reserve the right to delete at any time. All comments are solely the opinions of the individuals submitting them and the publication of them on this blog does not imply my endorsement or agreement. By posting your comments to the blog you are granting me the right to use them. Your submission of a comment constitutes your acceptance of this comment policy.
In other words: Play Nice

21 Responses to “Back on Milrinone…*Updated*”

  1. Melinda on June 16th, 2008 10:10 am
    1

    Miss Emma, and her family, are all in my prayers! Feel better, sweet girl.

  2. Melanie on June 16th, 2008 10:16 am
    2

    Thinking of you all and praying for little Miss Emma! Mel

    Melanies last blog post..Been Awhile!!!

  3. Kim Priestap on June 16th, 2008 11:03 am
    3

    Thank goodness she’s doing ok and going home. I’ll continue to pray that she stays healthy.

    Kim Priestaps last blog post..Happy Father’s Day

  4. Barb on June 16th, 2008 12:50 pm
    4

    Prayers are continuing that all is well and Emma can go home.
    Take care of yourselves, please.

    Barbs last blog post..Happy Father’s Day and a tag

  5. Meredith on June 16th, 2008 4:15 pm
    5

    I hope you make it home before we get there, but if not maybe we’ll pass in the halls. My own Miss Emma is having ENT surgery inpatient on Thursday (hopefully followed by open heart in a few weeks). Prayers for your Emma that you all are home before we arrive!

    Merediths last blog post..Paparazzi, Cinderella, Father’s Day, and a blessing

  6. kate on June 16th, 2008 4:33 pm
    6

    Checking in on you today.
    k-

    kates last blog post..Daddy Day

  7. Molly on June 16th, 2008 4:38 pm
    7

    Dear Heather,

    Praying for sweet Emma, for a speedy recovery, renewed health and a good time at home with you! God bless her, she’s so stinkin’ cute :heart: Gotta love a girl who likes a hearty breakfast of pancakes and bacon! :smile:

    Molly (:

  8. Holly Smith on June 16th, 2008 5:11 pm
    8

    Praying for you all–praying God’s continued protection over your darlin’ girl.

    Love you much in Christ,
    holly

    Holly Smiths last blog post..Summer Fun

  9. Nancy on June 16th, 2008 10:18 pm
    9

    Praying for your family. I check daily, but don’t comment.

    Nancys last blog post..A few days of rest

  10. Laurel on June 17th, 2008 10:37 am
    10

    :heart: :wub:

    Prayers for Emma continue here and I am looking forward to reading you post that you are on your way home. Asking Him to take care of everything for you. Praying for your health too Heather. You are so important to me.

    Love and Prayers, Laurie in Ca. :heart: :heart: :wub: :heart: :heart: :smile:

  11. Cathy on June 17th, 2008 12:03 pm
    11

    Thanks for the updates, Heather. Praying for you and your family~
    I’m glad Emma is going home tomorrow.

    Cathys last blog post..Links for Sharing

  12. Overwhelmed With Joy! on June 17th, 2008 1:49 pm
    12

    Oh, I’m so sorry to hear that Emma is back in the hospital but thank goodness she’ll be going home again very soon!

    As always, you and your family remain in my thoughts and prayers!

    Overwhelmed With Joy!s last blog post..4th of July Tutu

  13. Marie on June 17th, 2008 5:06 pm
    13

    Hi Heather,

    Praying for you always,

    Blessings,

  14. Lorie on June 17th, 2008 8:15 pm
    14

    Awww I’m so happy to hear this news, ccontinued prayers for Emma and for you my sistah!!

    Hugz Lorie

    Lories last blog post..Begin Expectantly

  15. Robyn on June 17th, 2008 11:50 pm
    15

    Heather, our family is keeping you and Emma in our prayers. I don’t always post a comment but I check in every day to see how you are doing and what is going on in your life. I hope things start to calm down and you will be able to enjoy your summer soon!
    Hugs!

  16. Angie McDowell Garza on June 18th, 2008 12:22 am
    16

    I just came across your blog and was touched by Emma’s story. She is a true blessing. You are a wonderful family. I will be praying for you all. ang :heart:
    Angie McDowell Garzas last blog post..The Right Stuff

  17. Sherry on June 18th, 2008 1:52 am
    17

    Good news about the drug and being able to go home!! I am sure Emma will be much happier there, pancakes and bacon notwithstanding! I will keep you all in my prayers.

    Sherrys last blog post..Back at the beginning

  18. bobbie on June 18th, 2008 12:35 pm
    18

    Sounds like she is eating well and has a good appetite! Way to go Emma!
    Praying she is home eating???Waffles????Soon!
    Hee hee! Praying the Lordfills your house with much laughter through the remaining week.
    Because of Jesus,Bobbie

    bobbies last blog post..What will they do???

  19. gomomyourock on June 18th, 2008 5:16 pm
    19

    Thinking about you all. Praying for Emma Grace.

    gomomyourocks last blog post..Project 365: Day 165 - June 13

  20. Miz Booshay on June 18th, 2008 5:51 pm
    20

    I just wanted you to know, that even tho I don’t tell you every day….I am praying for you and Emma….every day!

    God Bless!

    Donna

    Miz Booshays last blog post..

  21. Kathleen Marie on June 19th, 2008 11:15 pm
    21

    My goodness! That little gal has the angels surrounding her with loving arms! Keeping you all in my prayers as usual!

    God Bless!

    Kathleen Maries last blog post..Third Day Revelation Birthday Giveaway!

I would love to hear from you!





:alien: :angel: :angry: :blink: :blush: :cheerful: :cool: :cwy: :devil: :dizzy: :ermm: :face: :getlost: :biggrin: :happy: :heart: :kissing: :lol: :ninja: :pinch: :pouty: :sad: :shocked: :sick: :sideways: :silly: :sleeping: :smile: :tongue: :unsure: :w00t: :wassat: :whistle: :wink: :wub: