We are back in the hospital with Emma Grace. She came back Wednesday and is doing so much better today. She has been going down hill since they discharged her Saturday, and finally her father and I decided she needed to come back (with the okay from her ped, of course). Her labs have been so wacky lately and this flu bug has her really really dehydrated, which isn’t good for someone who barely eats or drinks anyways.
They are talking about discharge today, so we will see.
Being here, yet again, makes me realize how very blessed we are. I have met so many parents at Ronald McDonald House that have been through so very much this year. One family has twins that are 7 months old, both going through chemotherapy/bone morrow transplants. My heart just aches for them. They have been here over 3 months.
And that is just one story.
Looking around at all of these children, remembering the emotions and the gut wrenching pain that I felt while here 7 years ago, It wears on you. But then I realize that Emma is still here, she is still going strong. I look at her through the metal bars of her crib and thank God that she is doing so well. Through all of the heartache and medical tragedies our family has been through, we are still together and we are still here… all of us.
This morning I found myself emotionally tired and just angry at God. I am still sick from the flu etc, which isn’t helping my attitude, and I have not slept since we have been here. I miss my husband and my other two children. I miss my bed.
Did I mention I miss my bed?
Then I look around.. and think “But for the grace of God” and my attitude completely changes and I realize how blessed we truly are.
We are so very blessed.
I can relate in my own way to what you have written. I find myself angry at God sometimes when things in this life just don’t make any sense! I am always amazed at His love and His patience. If I treated anyone else like that, they would just walk away and never look back! Sometimes, life is just plain hard and it hurts. I am thankful that we have a Father who never turns away and whose heart is always inclined to us!
Connie
Where are you in Gainesville? I will be praying you are released today!! I hope you feel better, the world always looks better after a full nights sleep.
Hugs.
Loris last blog post..The Test of Mission Impossible
@Lori:
We are in St. Pete at ACH. And I totally agree…. the world always looks better!
we are not in G’ville
Thanks for your prayers, she is up walking around
-H
Heather I wanted you to that Tenth Avenue North is going to be here in Jacksonville. I am going tonight. Thank you for telling me about them
Praying for your girl, Heather!
Love,
Holly
Holly @ Crownlaiddowns last blog post..For Our Good
Heather, you are *precious*.
praise the Lord, I see in your twitter stream you’re on the way back to your bed and fam. HE is faithful, isn’t He?
I got my Crazy Love book, it’s GREAT. My prayers are with you and your family.
This post really blessed me today. It was just what I needed to hear. Thank you.
Jennifer (Conversion Diary)s last blog post..7 Quick Takes Friday (vol. 23)
{{{hugs}}}
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Healing prayers for all of you! What a rough season.
Mrss last blog post..Would You Say that to a Stranger?
Wow just Wow! I know what you mean with being sick and having a stinnking thinking atitude. I am struggling with that myself. So glad to hear the Lady Em is doing better and I do hope you get home ot your bed soon.
Hi Heather,
So sorry to hear Emma is back at ACH and hoping you get discharged soon. If you see Dr. A-K please give him a hug from me. I miss them all – we’re 4 hours away from Vanderbilt (but it’s a great p[ace too – just a longer drive).
Heart hugs,
Heidi
I understand the ‘anger at God’ business. But, aren’t we blessed, too… that HE can handle that!
Pamelas last blog post..I Miss You, Mama!
I’m so sorry to read that your daughter is sick.
Praying for her to recovery quickly.
I hear you on the anger issue. That was me last week. Long story…but Saturday at the Focus on the Family marriage simulcast, the Lord brought to light my anger and I was able to ask for forgiveness.
Keep the faith, Heather. You are such a blessing.
Oh, Heather, bless your sweet heart. I pray you will all be over the flu, and your sweet Emma will be stronger and well soon. Not good to be away from your bed when sick!
Love and Hugs,
Cathy
Cathys last blog post..Links to Share
From one Heather to another, who absolutely LOVES The Lord and trusts in His Faithfulness in all areas of life…
May He surround you and your family with the warmth of His Love
May He fill your hearts with His peace that surpasses all understanding
May He comfort you all in times of misunderstandings, pain and hurts
May He complete the Good things that He has begun in your lives, because ALL things are for the Good of those who Love Him and Trust in His Name
May you find Him in every area, at every turn and in everything you set your eyes upon
May you find healing in His touch, sweet and tender healing
May He surround you with His radiance and bless you all with ALL that He is, because He lives within each of you
May He do all of these things and more as you continue to tell Him these words, from your heart:
I BELIEVE
In the Power of Jesus and in His Glorious Name, Amen.
I trust that you will be on my mind and I will lift you and your family up as The Spirit reminds me
) – I’ve added you to my list of updates on my blog…you’ll be in my prayers daily, sister.
♥ Simply Heather
Hi Heather,
I just wanted you to know that there are many of us out here who pray daily for you, Emma and the rest of your family but don’t always comment. It is our calling to storm heaven and intercede on your behalf, to feel your pain, and even cry when you cry but to always press on for your strength and faith that you have been given by GRACE and always have, even when it is not felt, since we live by faith the essence of the unseen world; the evidence of things to come. “Count it all joy when ye fall into divers temptations; Knowing this, that the trying of your faith worketh patience. But let patience have her perfect work, that ye may be perfect and entire, wanting nothing.” So, lay back in the arms of Jesus and be totally covered in HIS blood and be anxious for nothing, for HE has been there before you and has conquered all to now build your endurance. Perfect love casts out all fear. Heather, your words have blessed me many times. Your are strong and able to fight the good fight. You are a winner not a looser; you are above and not below; you are the head and not the tail; You are a child of the KING!
Be very blessed this day and all glory and honor be to the Father, Son and Holy Spirit.
Sharyn
Heather Your attitude is filled with praise when you don’t feel like it, full of thanksgiving for you remember what the Lord has done and that is what He asks us to do and HE knows your heart!
I do pray you and Emma feel better quickly.
But your heart…that is doing just fine!
Because of Jesus, Bobbie
Hello Heather, someone forwarded me this link and I thought I’d share it with you, it really helped uplift me!
http://tinyurl.com/cbnjp8
Has anyone heard how Emma is doing?
many prayers and hugs!
I just found your blog and am sending lots of good thoughts and prayers to you and Emma. My daughter was very premature and had many, many health problems so we spent all our time in hospitals in NJ and PA. When she was 5 and we thought the worst was over, we found out she had liver cancer and the cycle started all over so I can relate being angry at God and having constant ups and downs. Lesley is 24 years old now and has a lot of learning and behavioral problems and still has a lot of medical issues but she’s our Lesley and we love her. Sometimes it all seems more that I can handle…but the Lord helps me.
Best of wishes to you and your precious Emma.
Donna