I’ve been listening to this song over and over while watching my daughter fight in the PICU. I’ve often had to remind myself over the last 11 days that He really is in control. I listen to the words and really let them penetrate my heart, and then I am less afraid for her. My mommy heart aches seeing her on a breathing machine. My arms long to hold her and make this all better, but I can’t. I have cried more tears in the last week, yet I know this is what is best for her. The virus has attacked hard, and her lungs need time to heal.
I look at her on the vent and cant help but ask why. Why her. Why now. Why in general. But I know he holds her heart (and mine) in the palms of his hands. I just have to trust that.
Which, quite frankly, is hard right now.
They are going to try to wean her off the vent today, but so far she is not tolerating it very well. She has a little bit of fluid around her lungs from the metapneumovirus, and her kidneys took a hit too.
So I am asking you to pray. Pray that her lungs and kidneys would do what they need to do. Pray that Mark and I will have the peace and the strength to sustain us through this ordeal, and pray that she tolerates weaning off the vent.
Thank you for caring about me and my family…
In the quiet of my soul
In the stillness I hear Your voice call
And I am overwhelmed
And I am lost for words
To describe You
Jesus You’re more than a friend
Jesus You’re more than my heart
Could ever express
Your love and Your grace
Never fail me
Your merciful touch always heals me
You bring joy to my soul
My heart longs to worship You my King
And I long to bring You a pleasing offering
And I am overwhelmed
And I am lost for words
To describe You
Thanks for the update. I am so sorry your sweet baby is still sick. I will keep praying for her and you.
Praying for you and your family! Beautiful song and sweet words to hold onto during this time!!
Praying for you and your little girl.
Sending prayers for you,
your sweet baby girl
& your hubby & the 2 E’s
Praying, praying hard for you.
Dear Heather-if I could, I’d pour into your heart all the hugs & support that people nutured me with when my newborn was in the NICU. Overwhelming fear,clinging to a thread of hope with my lifeline of Faith-everything is so fragile and tenuous. You have already come so far and been through so much-right now the song “Words i Would Say” is on the radio. Coincidence, probably not. The words ring through my head..-Be strong in the Lord-never give up Hope, He’s gonna do great things ,God’s got His hand on you ,thank Him for each day, Love will find a way..Come find peace in the Father..”, Just know that you are not alone in this ordeal-my prayers will be with you as God reveals His plan for your family, one moment at a time. Our God is a kind,gentle and compassionate God-big enough to move mountains, yet small enough to hear your every tear drop. You are loved. Will await more updates the time and energy become available to you. Peace, Heather. lori
Heather, I have been following this on Twitter and I wanted you to know that I am praying for you and your family. My own daughter has been through an illness over the past couple of months, it is a neurological, and I have no control whatsoever. I understand your mommas heart. I understand the anxiety. I also understand knowing that even though I’m not in control, someone is. It is apparent that you know that too.
) My heart goes out to you and my prayers are with you.
Praying for Emma and for you and her daddy and siblings. May God hold you all close and give you peace as He brings healing to Emma’s body.
Hugs,
Loretta
You are a great Mom! I just started reading your blog and am amazed at the peace you have. Thank you for sharing your stories and how God is holding all of you in the palm of his hand and never lets you go. I am praying for you and your daughter and family.
Even tho I told you on Twitter and FB…I am here telling you I am praying for all your requests..
Praying for Emma, and you too, Mama.
Praying for Emma, you and your husband.
OH Heather, my heart aches for what you are all going through. I don’t know if I would be strong enough to do it, but God has given you the strength and the faith to get through this. I will be praying for Emma and all the rest of you. God is good, please God, heal Emma’s body!!
Hey lady, praying for you all.
Praying for all of you right now Heather and asking God to heal sweet Emma’s body in His time and give you peace. Asking Him to shower you with His mercy and grace and lift you up above the circumstances right now. My mother heart aches for you and the anxiety that must be overwhelming moment by moment. I am so sorry this is happening to your family but I know who holds you close to His heart. Easy for me to say, I am not in your shoes but I know I can pray for you all. Love you Heather.
Love and Hugs, Laurie
Praying for your precious girl….
Mary
Praying for you guys!
Praying for your sweet little Emma and you all, Heather ~
I am praying for your daughter and peace for you and your family. He will see you through. Trusting is hard at times, especially when are little ones, so small and helpless, are struggling so. Lean into Him. He loves you so!
Praying for sweet Emma, you , and your family.
Praying
Oh Heather, I am so sorry you all are still facing this difficult time. I am praying for you, Emma and the rest of your family. Praying Psalm 34 over you all.
Praying for you and your family.
Heather, have you ever been introduced to Andrew Wommack Ministries? He speaks such amazing truths about healing and prayer. I always feel more empowered and at peace when I get a hold of his messages.
Praying and believing for a miracle for your family.
Nell
Emma is in my prayers. God Bless that little angel.
We never fully understand things some or all of the time, but He always does.
Hugs
Praying for you and your family. I look forward to following you your story. Thank you for your transparency.
Blessings.
Heather,
My tears, thoughts and prayers are with you. The Lord will grant you His perfect peace for you are firm in His purpose and you put your trust in Him Isaiah 26:3
Praying for you and your whole family. This is tough!
For anyone who isn’t aware, The Burn Band has a Facebook fan page. I had to go and look and see if they did because this video that you posted, Heather, spoke volumes to me. Just search for “the burn band” (w/out the quotes, of course) on Facebook and you should find it.
I hope Emma is better soon. Just keep leanin’ on your faith, family and friends, Heather. He will see you through. *hugs*
Praying for you all and hugging you and sweet Emma from half way across the world. We love you! Paula, John, Zane and Zach