a glimpse into emmas world…

This is Emma in May at Tampa Gen. Inpatient Rehab:

{she isnt crying, it is called a “Neuro Moan” from the swelling on her brain}


Notice how she is holding her right hand and turning her head to the right and how she is taking really small steps. I am amazed at how much muscle mass she lost in her legs and upper body. Laying in bed for 3+ months will do that.

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This is her on Tuesday at Transplant Clinic:



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And yesterday morning still in her bed:



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This is Emma’s teacher yesterday at homebound school. At the end she uses her BIGmac appropriatley to tell us she wants to “stop”…



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She has come EXTREMELY far in the last month. I am just so very amazed when I see these videos! Seeing her everyday, you don’t really notice all of the small differences… but boy is she different!

She got her new lightbox yesterday, {the one she was using in the video was one we bought on Amazon just until we received her new one from the school board} She will begin using it today but here is a picture of it:

lightbox

I will try to get video of her using it today in homebound school.. I am so excited that it finally came!

Thank you, Lord, for this precious gift named Emma Grace….

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Comments

  1. carol says:

    Thank you for letting me see that wonderful gift. Makes me want to squeeze her. Still praying for you all.
    Blessings,
    Carol

  2. Erin says:

    I really enjoyed watching the videos and seeing how far she has come. I love her teacher, how patient and calm she is. I love her pretty voice. :)

  3. Thank you for the glimpse into what y’all are experiencing. God love you all and keep you progressing forward.

    We are 9 moths in the wheel chair here, and the biopsy they finally (ugh) did to confirm the diagnosis showed nothing.

    So, 9 months, and they are clueless.

  4. April says:

    I was beyond amazed to watch these videos and see the progress of a little girl that I have prayed for so often. The first video was hard to watch, I admit. But I kept thinking of the ultimate miracle that God continues to perform in her to this day. The subsequent videos are so touching. You are raising a very special little girl and she is lucky to have such involved and loving parents.

  5. Ann says:

    Heather and family,

    Thank you for the videos. They are priceless. One thing I noticed for sure is that Emma has a song. I loved watching her singing in the bed. What great music she makes.
    Thanks,

  6. Sharon says:

    What a precious girl! So sweet.

  7. Janice says:

    Thanks for peek into your world with sweet Emma. Such progress she’s made, and I, too, love her song. So very precious she is. Continued prayers for all of you.

  8. Kathy says:

    Heather, your girl has come a LONG way, the brain is an amazing thing, and hers is healing.

  9. Tears. Joy, grief, all mixed together. What amazing gifts…what wrenching sorrows He gives to those who love Him. Thank you for the glimpses. Isn’t it funny how the little video snippets remind us of how far we’ve come…yet what has been lost.

  10. Susan says:

    amazing videos…thanks for sharing a peak into your and Emma’s world. She has made such great progress. Her teacher is so calm….perfect. I don’t think I ever told you my daughter Amy works with autistic kids at a horse ranch here. She is a volunteer and just loves kids and she is only 13. She wants to become a therapy horse trainer. I thought she would be so “tired” of seeing me in pain with my fibromyalgia that she would shy away from anything like this but the Lord gave her such a sweet heart….hugs to all

  11. Wow. She is a real gift. I see joy on her face and that is a wonderful miracle. Go Emma!

  12. Dianne says:

    Wow! That really is a big change. That’s so wonderful that you have the videos to truly see the difference. Praise God for her. :D

  13. lynn says:

    Thank you for sharing these.

    Isn’t it amazing how the Lord has brought her this far? I remember when her body was shutting down, I sat at my computer and just cried. For her, you and your family and yes, me. Your blog has been such an encouragment to me, and I so enjoyed Miss Emma’s post. Now, I cry again, but these are happy tears. The Lord has done a mighty work! He would have done a mighty work if He had chosen to take her home, but His way is best. He was so kind to leave her here so we could all learn from her.

    Lord bless,
    Lynn

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